Even though I have found that prednisone works like a miracle drug for me and takes away my migraines and headaches for the number of days, the aftermath is not so much fun. It is as if the week of freedom makes me completely forget about what it’s like to have migraines, what the symptoms are leading up to the migraine, what happens to me during the migraine and especially the day following the migraine. This week came as if it was a complete surprise to me. Every time I have gone on prednisone I have had a really bad week following, so should have known, but it was nowhere in my memory as I drudged through the week.
Luckily I had enough medication to get me through Monday, which was spent all day in the Pediatric ER at Sparrow. 8 hours of sitting, waiting, trying to make Gideon comfortable, dealing with fever, puking, pain. It was a good reminder of what my friends and family have done for me over the past year. And I was very thankful that my migraine had not returned yet. But it was the last day of the prednisone…so now I just had to wait for the head pain and migraine to come again.
I didn’t have to wait long. Tuesday morning I awoke with the beginnings of a migraine and the regular head pain had returned. By the end of the day the migraine had kicked in full gear, so I took a triptan, which helped me get through the day…but I was woken up at various points in the night with the pain and then remained in bed all of Wed and Thurs. The pain was almost unbearable at times. This happens when both the migraine and the new daily persistent headache are both competing for top spot on my pain scale. I got a lot of use out of my IceKap and I even brought out the eye patch I bough in case it might help with the severe light sensitivity I get during the bad migraines. I spent a good deal of time sleeping, but I also watched a good deal of NCIS on my right side with my right eye close and one ear plug in my left ear. This minimized sound, brightness and business and allows me to block out the pain for periods of time. This migraine also brought on a great deal of jaw pain and so I pulled out my bite guard…it was as if I had to pull everything out of my aresanol to deal with this big whopping migraine.
I had already decided I would take meds on Friday morning to help with the pain if it remained and it did. So I took my migraine cocktail (Toradol, Zofran and Benedryl) and a triptan for good measure and went back to sleep for 4 more hours. The rest of the day I thought I was feeling drugged and then remembered the postdrome symptoms and I was smack dab in the middle of them. How could one week of relief make me forget how all of this works.
When I woke up Saturday (today) I felt great and I took Gideon to swim, went to CVS and to QD to get our after swim donuts (and milk and orange juice). When I got home I asked if everyone wanted to go into town later because I was feeling great, but I just needed a nap). Again how could I forget what 4 days of solitude, tucked away in my dark and quiet room does to me…It makes me fatigue easily and makes dealing with chaotic situations not so well. But I had forgotten all of that and we headed into town. After doing a return at Kohl’s and doing some shopping, I was whipped and couldn’t figure out why. By the time we left the store I was so irritable because the boys were being boys (not even being bad, just noisy and busy: chaotic). We had planned on going out to eat and just going inside the restaurant kicked up my anxiety a notch that when I came back to the car I had to put ear plugs in and ended up having to keep them in the entire evening. By the time we were done eating, there was no way I was going to be able to go grocery shopping too. How could I forget all of this during a one week of reprieve?? It is beyond me! But thankfully I am on the flip side of that migraine and I will take it easy tomorrow in the hopes that it will keep another migraine from coming on so quickly as it tends to do these days.
Friday sucked as much because I was still mad and now becoming very depressed because I didn’t know what to eat. So I ate nothing for breakfast, a cheese stick for lunch and a tortilla for dinner. The worst part of the day though was that my migraine was not only awful, but the light sensitivity was awful and it was extremely bright outside and I had to pick up the kids; Gideon from the bus stop, no big deal and then Josiah from school because Dan forgot about him and had to work late. So the picture here is of me trying to drive with an awful migraine while trying to block the sun out of my right eye where I was already being stabbed from the inside. But it really demonstrates how I really felt as well.
my family's new normal 