The last 24 hours have been horrendous…no pain meds at all, only the magnesium. Oh and in the midst of this horrendous pain, they decided to do the MRI. MRI + Massive Pain = severe anxiety and no MRI. As I sat waiting for my turn in the MRI I began have a panic attack because I knew there was no way I could possibly make it through…my nurse finally came down and pumped me full of morphine. It was as if I could feel all of my worries and pain melting away. I made it through the MRI and brought me back to my room.
A neurologist finally came in and laid out a plan to treat the rebound headache. And so it begins. They have given me the first round of medicine, Topomax, to treat this, what should I call it, shitty headache. I’ve been told that the side effects could be interesting. For example my nurse who had also taken this medicine told me it made her stupid. She would order food at a fast food restaurant, go to pick it up and wonder who ordered it for her or she would get up to go to the bathroom and couldn’t find the bathroom in a one bedroom apt. so this should be an interesting next couple of days.
They tell me it could take 2 to 3 days for this medicine to work, if it works, and if it doesn’t work they try something else. so it looks like I will be in here for a little while yet. On a positive note and even though I feel bad, I am really happy that my mom and Bob are coming home. When I was going into the MRI and was in so much pain all I could think was ” I want my mom” and now I get my mom. Up until today Dan had been so sick he couldn’t come up to the hospital. I was so glad that he was feeling well enough to come visit today and bring me a few things from home. I am so thankful for such a supportive family and so many supportive friends I love you all and thank you for all you’ve done including all the prayers. I’ll try to update again tomorrow.
I went to work feeling ok…still a mild headache which had remained constant all week. But I didn’t take any medication at all this week.
I did however make great strides in helping out at work. After combing through lots and lots of notes, it truly was back to the beginning we needed to go. So I gathered up what information I had found and went over it with my boss. At 3:00 pm we had a meeting with his boss to discuss our findings. At this point we were all very hopeful that this would solve the problems the facility had been having for the past 7 years. But we wouldn’t know until all the final details were worked out and we actually tried it (for which I would not be there, but on this day I didn’t know that it would be the very last day I worked at this place of employment). The meeting ended at about 4:00 and at approximately 4:15 pm unbelievable pain struck above my right eye. It came on so fast and so hard that I wasn’t sure how I would get home. But I made it and went straight to back to bed.
My first thought was that the spinal headache has returned. Back to bed I go hi ho hi ho. Laying down helped a little bit, but the pain wasn’t completely gone when I laid down, so there was a chance that it wasn’t a spinal headache either. I just didn’t know what to do, but by 10:00 pm the pain was so severe that I decided I needed to go into the ER, but this time I was going to go to Sparrow ER. Now to be done with this bleeping headache (little did I know)!!
The only problem is that the boys are in bed and I can’t drive myself. Social media to my rescue. I asked for a ride to the ER and luckily my dear friend Christina stepped up to the plate. She even stayed with me until 2:00 am. By that point they said I would definitely be there until morning when Dan could come get me unless they were going to admit me…at 2:00 am they still didn’t know what they were going to do. Back in the ER to get a 2nd blood patch (at least I thought this was the problem). Hopefully this will be the last procedure I have in 2015 (If only this were true!)
This was a smile of relief. They gave me morphine!
All tucked in for the night at Sparrow. Looks like I will be here for a little while, likely until Monday when full staff is available for testing. But I am nice and warm, my pain is being managed and it is very peaceful. Counting all my blessings on this very very cold and blustery evening.
Feeling sooooo much better today. Which is good because I had to go to work…no more leave, so it was off to work I go again. But I was still taking meds for pain…mostly Flexeril, Ibuprofen and Benedryl. The headache wasn’t completely gone, so I wanted to keep on the same routine so that the migraine didn’t return. However when I got to work today I felt really weird, like I was floating on air…pretty sure it was the Flexeril.
Thank you for all the prayers for today. I was however able to work the entire day with little to no pain. Still working the desk job trying to solve the problems at work.
I even felt good enough to play a board game with Dan when I got home after we put the kids to bed. It has been a very very long 3 weeks and I am so thankful that it has all come to an end.
I called in sick, took a Tylenol 3, Flexeril (a new muscle relaxant that someone recommended I try), Ibuprofen and Benedryl and went back to bed. And then I got a call from Human Resources that I had to come work. I didn’t have any more leave left and if I didn’t come to work I could lose my job. I told her about all the medication that I had just taken, but she basically insisted that I come to work. So I got out of bed, my head in serious pain and all meds starting to fully kick in. I definitely should not be driving but I definitely can’t lose my job. Quite the conundrum! But I headed in to work. When I arrived I was told I couldn’t do any work because of the medications that I was taking. Human resources vs. boss made it so that I had to come in to work but I can’t work. Well except for desk work.
So for the next week I was given the task to figure out why the process we were using to harvest botulinum toxin from C. botulinum. We had been having difficulty producing large amounts of toxins, so I started going through past documents to determine what we might do to better the process. So I went back to the very beginning!
Headaches sure can be debilitating:(. Home today after a 3 day battle with a headache caused from work stuff. Physically not stress caused. But a headache nonetheless. My brain feels like it is swelling. I am
ready to just be better and healthy!!
Chiropractor or Urgent care?!?! I called our chiropractor and they’re not open so I decided that the unusual nature of headache will land me in urgent care. So much has happened in the last week that I just wanted to make sure this wasn’t from meds, allergic reaction and more drugs. No relief by any meds or Dan adjusting me for 4 days. The swelling is all encompassing in my face, head and down my spine. So could be out of alignment could, be anything. Ugh!
So I went to Urgent care and the doctor pretty much just prescribed me Toradol in pill form (which didn’t do anything) and said t
o take Benedryl. When that didn’t seem to do anything for the headache, I called back into the Urgent Care and they prescribed me Tylenol 3 with Codeine. The doctor at the Urgent Care also said it might also be helpful to go to the chiropractor, so I found one in town that was open and went straight there. That didn’t seem to help either. So I’ll just keep taking the Tylenol 3.
Migraines suck! I woke with a migraine, took some meds and went back to sleep. Finally coming out of it now but man was it a doozy. Luckily I had enough sense to take Excedrin when I woke up with it. When I woke up, I thought I could head to work because the migraine had subsided, but I haven’t had one in so long that I completely forgot about the crazy fog/haze that remains for some time. I think I have taken so many drugs this week with the allergic reaction that my body is just a mess.
Ugh! I did read that the steroid I am on from the allergic reaction is often prescribed for migraines…so I am going to go take it and see if it will lift this haze!
So apparently some of the super fun side effects of Prednisone can explain the crappy couple if days I’ve had. Trouble sleeping, heart burn, blurred vision, nausea, the awful migraine like headache this morning and the foggy feeling for the rest of the day. I am like a textbook of side effects. My family is ready to have me back and able to function again and I am ready to be back. I could use some prayers in general but especially tomorrow morning when I am working at Josiah’s swim meet.
I had a Dr. Apt with Dr. Avula my allergist on Jan. 21st to discuss further testing of foods and other possible allergens. It was also my day to get my regularly scheduled allergy shot. But because I was also seeing the doctor a different nurse did my allergy shots. There are three possibilities that could have happened during this particular set of allergy shots: 1) the dose was just too high for my system, 2) I was given the wrong dose from the correct set of vials or 3) the next set of vials were mixed up and the dose I was given was actually 10 fold higher than I should have been given. We will never know. When the shots were about to be administered I asked the nurse if this was going to be my highest dose so far. I was wondering because I had been having increasingly more swelling around the injection sites. As soon as I asked her the question, she responded with “oops” and she put one vial down and retrieved a different one. It was strange, but I just thought I was ask about it later.
I got the injection and then the Dr came in and we started our discussion about options. when my first sneeze came. Throughout the conversation, I became more congested and kept trying to sneeze. Both of my arms began to itch very badly (which normally doesn’t start happen until about 2 hours later). I started scratching all the way up and down my arm. No one seemed to notice anything. By the time I checked out I was sneezing. This was about 30 minutes after the injection when I checked out.
By the time I got to the car I knew something was wrong and I took a Zyrtec to help the allergy like symptoms. And then we went to pick up Gideon from day care about a mile from the doctors office during which time my nose started to run and my eyes were starting to burn and then I started to cough. Josiah instantly recognized that something was wrong when I started coughing because he suffers from asthma. So I called the doctors office and headed directly back to the office but the doctor had already left and was not answering his phone. I sat at the office for about 5 minutes waiting to hear from the doctor or to figure out what I should do. Instead I googled anaphylaxis and immediately left the doctors office and headed to Urgent care. I still had not heard back from my doctor and as it turns out he had not turned his phone back on and his staff were freaking out, even his wife because they knew that he needed to get a hold of me.
In the Urgent Care, I still had to fill out forms even though I told them I was in anaphylaxis, but once they called me back they moved fairly fast. I itched everywhere, especially on the palms of my hands and the bottoms of my feet…I even bruised the bottoms of my feet from trying to scratch them with my big toe. I could no longer breath through my nasal passage and my air way was beginning to close off. My face had also began to swell. Oh and I had both boys with me through all of this. Luckily they both had electronics and sat quietly in the corner…although they were very interested when they started giving me shots. Dan was still at work and was on his way.
I learned a very valuable lesson from this visit to urgent care…when you are facing a life threatening situation GO TO THE ER!!! But as soon as they had me in the back they gave me a shot of epinephrine and gave me Benedryl and Prednisone. And then they left the room. I was not hooked up to monitors and they had not started an IV. In fact I was on a chair like table that I couldn’t even lay down on. Pretty sure they should have sent me to the ER (especially since they were in the same building). But the first shot of epinephrine didn’t work, so they had to give me another one…and soon after I could begin to breath again and the itching on my hands and feet were starting to calm down. On the flip side the effects of the two shots of epi were taking full hold. I was shaking everywhere, even my butt cheeks were shaking. So weird! And then they just let me go home and said I could drive. Again I am pretty sure they should have sent me to the ER and a good lesson about going to the ER instead of Urgent Care for any kind of allergic reaction. Instead of driving right away, we dropped off the script for Prednisone and went to Taco Bell for some dinner. Once we picked up the script I was feeling a bit less shaky and decided I would just drive as carefully as I possibly could.
So we headed home having no idea what this day would lead to in the very near future.