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How can I forget so easily?

Even though I have found that prednisone works like a miracle drug for me and takes away my migraines and headaches for the number of days, the aftermath is not so much fun.  It is as if the week of freedom makes me completely forget about what it’s like to have migraines, what the symptoms are leading up to the migraine, what happens to me during the migraine and especially the day following the migraine.  This week came as if it was a complete surprise to me.  Every time I have gone on prednisone I have had a really bad week following, so should have known, but it was nowhere in my memory as I drudged through the week.IMG_7959

Luckily I had enough medication to get me through Monday, which was spent all day in the Pediatric ER at Sparrow.  8 hours of sitting, waiting, trying to make Gideon comfortable, dealing with fever, puking, pain.  It was a good reminder of what my friends and family have done for me over the past year.  And I was very thankful that my migraine had not returned yet.  But it was the last day of the prednisone…so now I just had to wait for the head pain and migraine to come again.
12742637_1745763652304281_8267423894534451792_nI didn’t have to wait long.  Tuesday morning I awoke with the beginnings of a migraine and the regular head pain had returned.  By the end of the day the migraine had kicked in full gear, so I took a triptan, which helped me get through the day…but I was woken up at various points in the night with the pain and then remained in bed all of Wed and Thurs. The pain was almost unbearable at times.  This happens when both the migraine and the new daily persistent headache are both competing for top spot on my pain scale.  I got a lot of use out of my IceKap and I even brought out the eye patch I bough in case it might help with the severe light sensitivity I get during the bad migraines.  I spent a good deal of time sleeping, but I also watched a good deal of NCIS on my right side with my right eye close and one ear plug in my left ear.  This minimized sound, brightness and business and allows me to block out the pain for periods of time.  This migraine also brought on a great deal of jaw pain and so I pulled out my bite guard…it was as if I had to pull everything out of my aresanol to deal with this big whopping migraine.

I had already decided I would take meds on Friday morning to help with the pain if it remained and it did.  So I took my migraine cocktail (Toradol, Zofran and Benedryl) and a triptan for good measure and went back to sleep for 4 more hours.  The rest of the day I thought I was feeling drugged and then remembered the postdrome symptoms and I was smack dab in the middle of them.  How could one week of relief make me forget how all of this works.

When I woke up Saturday (today) I felt great and I took Gideon to swim, went to CVS and to QD to get our after swim donuts (and milk and orange juice).  When I got home I asked if everyone wanted to go into town later because I was feeling great, but I just needed a nap).  Again how could I forget what 4 days of solitude, tucked away in my dark and quiet room does to me…It makes me fatigue easily and makes dealing with chaotic situations not so well.  But I had forgotten all of that and we headed into town.  After doing a return at Kohl’s and doing some shopping, I was whipped and couldn’t figure out why.  By the time we left the store I was so irritable because the boys were being boys (not even being bad, just noisy and busy: chaotic).  We had planned on going out to eat and just going inside the restaurant kicked up my anxiety a notch that when I came back to the car I had to put ear plugs in and ended up having to keep them in the entire evening.  By the time we were done eating, there was no way I was going to be able to go grocery shopping too.  How could I forget all of this during a one week of reprieve??  It is beyond me!  But thankfully I am on the flip side of that migraine and I will take it easy tomorrow in the hopes that it will keep another migraine from coming on so quickly as it tends to do these days.

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My Migraine Cave is Complete

My Migraine Cave

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The idea behind the migraine cave did not come from me. In fact I used this blog post:  Migraine Cave. Her list was very complete and it made sense to me so I went with it!!!!

1. Room-darkening thermal drapes block out light even on the brightest days.  Check!

So far so good. But the real test will be during my next migraine. 

2. Dimmers on your lights help you gradually adjust to light as you begin to recover.  Check!

I just use a small and dim light 15watt

3. A wide variety of pillows help to prop you up when you are tired of lying flat but not ready to sit up on your own yet. Check!

I have lots of pillows. In fact I got two new body pillows for Christmas. 

4. A small refrigerator with freezer can store ice packs, water bottles, healthy snacks, and medications that require refrigeration. Check!

 I bought the mini fridge on a virtual sale on FB for $30. Very excited that it fit so perfectly under the table. The Fridge is stocked with water, Ensure and cheese sticks for now.  

5. A small microwave allows you to warm hot packs quickly, heat water for ginger or peppermint tea, etc. Check!

 I got the microwave on a virtual sale for $15 and the table for $9 at Goodwill 

6. Fill the top drawer of your nightstand with abortive and rescue medicines so you can find them quickly in the middle of the night. Check!

 Flashlights, abortive a, TV controllers and iPad with headphones 

7. Keep non-perishable, easy to digest snacks in your nightstand, too. Check!!

 Crackers, ramen noodle cups, meat sticks, sour candy and a new minion Tervis mug that fits in the microwave 

Sweet snacks: Hershey Kisses and Gheradeli chocolates and the oh so important Oyster crackers in the Tupperware container. 

Popcorn, pop tarts, lunch on the run chicken and tuna salad

I also have some perishable stuff like fruit 🙂

8. Sunglasses or FL-41 tinted glasses can be stored nearby, too.  Wearing them now!

 Just got my new Theraspecs and so far they seem to really be helping.  But I think I need to bedazzle them. They are not cute!! 

9. Ear plugs or noise-cancelling headphones help to block out those loud noises that make the pain worse.  Check!!

 I have worn ear plugs every night for bed since shortly after I got married. Someone snores!!  I always have ear plugs nearby; by my bed, by the couch, in my purse, and in the car.  

10. Fill a basket or box with comfort items and keep it near your bed.  Check!

Rice bags, head scratcher, ear plugs, my monkey, eye mask and neck rest

11. Keep a small flashlight nearby to help you find what you need in the dark. Check!

I have Flashlights, abortive a, TV controllers and iPad with headphones in the drawer in my end table. 
12. A TV tray or lap desk is nice when you get hungry but are too weak to sit at the kitchen table. Check!

 It hides right under the table. Almost a perfect fit!! 

13. A power strip is handy to keep your cell phone charged in case you need to call for help.  Check!

Gotta have all my electronics plugged in!! 

14. A fan can be helpful if you tend to get overheated during an attack. Check!

 I’ve had a fan running in my bedroom since I was in college. 

Oh and one cannot forget back up supplies!! 

Still gathering a few things but for the most part my Migraine cave is ready.  I just need a sign which I am hoping to get back from the USGS today. And the sign is perfect!!  The cave is complete 🙂

 

All this means that I will feel a little more prepared for the next migraine when it comes and that brings me great comfort.