0

MHNI Visit #3

My mom and I are on our way to down to MHNI for a full day of apts. Today’s visit will also determine if I will be able to continue on Short term disability and whether or not my job will any longer be held for me. So much in limbo right now. My last day of FMLA is May 25th and STD lasts until Aug 6th. I’m not even sure what to pray for at this point. But they will do another nerve block today which will hopefully give me a week of relief but when it wears off the migraines and headaches come back in full.

Today I met with Dr. Lake (pain Psychologist), Dr. Da Silva (Neurologist) and Andrea (physical therapist.  The main things that came from this were that they titrated Norflex daily down to stop the medication due to side effects.  I was still also increasing Lyrica (but side effects from Lyrica were also starting to take effect as the dose increases, but I am still willing to give it a try). Dr. Da Silva also recommended that I meet with the General Pain Division, Dr. Shamis to see if there might be more options for other nerve blocks to try.  Dr. Da Silva also did another nerve block in my temples and doubled the steroid.  I am very much looking forward to a few days of pain relief.

Starting to lose hope that the doctors will ever really figure out what is going on and how to help solve it.

image

Medical Notes from the visit to MHNI

Headaches: Some improvement continuing, but has also had some very severe headaches typically related to extensive talking with a friend that triggered a three day incapacitating headache, exertion in combination with a head-down position when she took a walk with her family and watched her kids picking up rocks and head down position when working at the computer.

A supraortbital aricular temporal block from Dr. Da Silva on 4/22/15 gave her a clear week of relief wtih a headache level dropping to a mild level for extended periods of time.  The severe headache triggered teh the walk and looking down occurred exactly one week after that block.  She will have a repeat block today by Dr. Da Silva, followed by a possible Radio-frequency Nerve Root Ablation.

She reports an increase in stress concerning her ability to return to work successfully, and other financial concerns that are unrelated to work including trying to sell a rental house that they are in the process of repairing after it had been vandalized by their tenants.  Her FMLA expires on May 25th.  Her employer (Neogen) has sent her a note explaining that they will not be legally required to maintain her job for her, but may be willing to do so when they receive appropriate information from us.  She logged in the appropriate form with Medical Records today and I put her name up for discussion with multidisciplinary treatment team for our next meeting on Tuesday, May 19.  I am also sending her a copy of this note which outlines her progress and behavioral treatment.

As she explained the ergonomics of the job to me,  it involves a great deal of laboratory work, making media, working with big dishes of media, and working over a safety hood that requires her to lean forward and extend her arms out in front of her which put some strain on her neck and back musculature.  We discussed trying to keep her self centered over her hips, but I also talked with our physical therapist about these issues and how that might be addressed in physical therapy.  She is scheduled to see our physical therapist, Andre, shortly after this apt today.

Also, she has continued to have some cognitive issues with word finding and word substitution.  Her job requires significant Cognitive demands.  In my judgement we are making progress but not in a position where she will effectively make a return to work before May 25th.  However, this is a treatment team decision.  She will see Dr. Da Silva, her primary neurologist with our group later this afternoon.

Anxiety and depression remain improved: however some return of depression after the last weekend with severe headache after she spent three hours talking with her friend.

She reports excellent adherence with relaxation techniques, and states they are quite helpful with the moderate or low-end severe headaches although it is very difficult to relax when the headache reaches an intense or incapacitating level.

I introduced her to biofeedback training. Bitemporal EMG was 2.25 mcV at baseline which is normal range.  However, when she would talk, it would rise and remain about 7 mcV, requiring some sustained attention to bring it back to a lower level.  With visual feedback she was able to drop this to 1.5 mcV and sustain it at that level, at times dropping a little below that, which is our target range.  I underscored the importance of continued attention to jaw relaxation, particularly while she is doing other activities, and returning to her baseline after talking with some sustained attention.  The temporalis may play a key role in some of the vice-like pain over the ears extending to the top of her head.  She also reports pain at times in the TMJ area, that may even extend into the mandible.

Right cervical trapezius EMG was elevated to 3.5 mcV range at baseline.  With instructions to sit with good back support and imagine that she was suspended from a cord with extension of her spinal column aligning her neck through the top of her head, she immediately dropped to below 1.5 mcV.  We discussed the importance of ergonomics and how she keeps her head from being in a down position, using a music stand to hold papers that she may need to work from, consideration of getting a monitor at eye level rather than hunching over to look at her laptop, not sitting on the couch when working on her computer at home, consideration of a wireless keyboard that she could hold on her lap while looking at the screen at eye level.  We also discussed the importance of returning to good posture positions and jaw relaxation as a baseline condition.

I will see her again at her next medical return visit.  She stated the session was quite helpful to her.

Dr. Lake

Advertisements
0

ETran and Music Concert

First Ride on ETran

Ever since this all started back in January and I was put on meds where my cognitive abilities were questionable I decided that I shouldn’t drive.  And then it was confirmed by my doctor that should not drive on the May 7thcocktail of meds that I was on…so I refrained from driving.  Besides friends who have been so kind to come and take me places (Carrie McHugh David, Dawn Tomlin, and Christina Coblentz Yoder). and of course my family (Sherry and Bob Weaver) I feel trapped at home not being able to drive however most days I didn’t really want to leave my house so it was ok.   But I was ready to get out and out about a little.

But Mindy a dear friend that has MS learned of a service in her county that would pick up and drop off at her house.  For her this was wonderful, so she could go to Dr. apts, take the kids places, have options.  So I looked into my county and they had a similar service, called ETran.  This was my first trip on ETran.  It is really pretty bumpy out on the country/dirt roads, but at least I was able to go to my physical therapy appointment on my own.  The bumps in the road did however escalate my head pain. Just hoping that it won’t turn into a migraine.  It is a great feeling knowing that I have a way to get places if I don’t get too ill from all the jarring. Should be a short ride though.  Unfortunately I did have to take Zofran for nausea but the head pain only escalated to a 3.

I had my first Physical Therapy appointment today.  In Charlotte, Hayes Green Beach Hospital has all of their physical therapists located at Alive.   I was assigned to Luke who had had experience with Neurology and Head pain patients.  He was great but man did it hurt my head 😦

Josiah’s Music Concert

IMG_4539In the evening I had to go to Josiah’s concert and I so badly wanted to go, but my head pain continued to increase, and the anxiety of being in crowd was very real.  But I took a Toradol shot and used ear plugs and was able to get through the concert.   I was so glad that I got to attend an event for the first time in a long time.  Josiah is up front on the left with the solid blue shirt and jeans.

img_7169

 

0

A 15 year old Hoya Plant

May 5thThis Hoya has such beautiful flowers. We have had this plant for 16 years. We got this plant right around the time we started dating and it just keeps going. Just like our marriage. God gave me a best friend and an amazing husband. These past 15 weeks have been hard on us all but Dan has stepped up in so many ways. And now he even does everything without pouting j/k. But the beginning was rough when he couldn’t understand. But he gets it now. No way I could get through this without him and my parents ( Sherry Dunne Weaver and Bob Weaver). They have done so much I can’t even begin to explain but they took Gideon and I in for almost 6 weeks because I was non functional. I am back in that boat again but we are trying teach Josiah to make dinner or lunch and to take care of Gideon if dad has to be gone and i can’t help. Many others have helped out too and I thank you for your continued support. This isn’t over yet unfortunately but with the support I have we will get through this. Thank you is barely enough but from my heart I thank you.

Sandi Davidson: Thinking of you Heather. You have had a rough road lately. Hopefully it will get better soon.
Dawn Tomlin: Words can’t express my support and love. You all are adapting. God is your stronghold. It’s amazing to be apart of your lives. Through sickness and health!! We are in this together. You are NOT alone!!
Heather Loose Johnson: Love you too friend. We sure have been through a lot together haven’t we.
Merry Dunne Blades: Such a Beautiful & Unique flower just like your relationship with Dan and your Wonderful Family.
Sherry Dunne Weaver: Amazing how little blessings like this flower shine through even in the darkest times.
Heather Loose Johnson: It is funny how taking a picture of these amazing little flowers to post on FB, that I got all that out of a flowering plant.
Anita M. Bremmer: Beautiful plant! We wish you well, Heather!
Today I went to see my family physician, Dr. Wulff, to follow up on blood tests that showed a high cholesteral level and low B12.  He gave me some paperwork to help reduce cholesteral naturally (but I never did follow it 😛 ).  And then he gave me a B12 shot.  He set me up on a 90 blood work for cholesteral to see if it went down naturally.

 

0

Nerve Block Temporary Success

Had a great day! The steroids from the nerve block really calmed the headache down. And then today I got my numbing spray for the nerves/trigger point. My mom Sherry Dunne Weaver and I had quite a time figuring it out but we got it. But both the steroid combined with the spray and I got. To be functional today. I hope the steroid lasts longer than they anticipate because I it so wonderful to be functional.

However, some of the meds are leaving it difficult to concentrate or think very. Always side effects. But we went to Walgreens and 1 garage sale this morning and then out to dinner to at the restaurant where Login Loose made some rockin nachos. And at the end of the night still a low level headache. I am going to be so bummed when steroids wear off. But will enjoy my time of relief.

I have been so very thankful for my parents taking us in and for taking care of us!

10411144_10154166966635058_2921069545689713733_n

A really funny meme to brighten my day and yours…especially since this is the 100th post I wrote.

April 24th

0

Really Bad Day

Today is one of the bad days. They suck. I stay in my room. Don’t feel like eating and just lay there wishing this would all just go away already knowing that they have not figured out the cause which makes it extremely difficult to treat.

Mindy Richmond : Sorry babe. Really hate that this is happening to you and wishing I could make it all go away. Praying still and sending virtual hugs your wa
Shanon SmithSo sorry to hear this! I hope they figure it out soon!
John Silverstone: Still praying and hoping they find something soon.
Merry Dunne Blades: I would love to kick someone in the butt, but not sure who. Thank you so much for the beautiful story about the rescued horse going to his rescuers Wedding. That made my day. Wish there was something that would make yours. Love, Hugs, & Prayers.
Dianne Clone: Love & prayers dear friend
Shannon Rogers: So sorry sweetheart. You are such a trooper. Prayers still going up for you…
Heather Loose Johnson: Thank you all for the prayers they carried me through the day. I was also visited by a retired sweet Pastor. I was brought to tears by him praying over and for me that it reminded me that on those days I can’t seem to turn to God because of grief that I know others have been going to God on my behalf. And for that I am ever so grateful.
Carrie McHugh David: I feel your pain.
Kathy Smith: Prayers for you, my friend. So sorry you have to go through this.
Fay Johnson: So sorry you have to go through this, I hope they find something soon. Your in our prayer.

It is comments like these that made the really bad days a little bit better, knowing that so  many were praying for me and thinking about me.

At least during the days where I can’t leave my room, Login is there to entertain Gideon…and Grandma and Grandpa are loving on him and taking care of him.  And I know that Josiah and Dan are making their way through.

0

Time Outside and Time with my Boy

Playing Ice cream Play doh with Gideon!  I hadn’t realized how much I missed him until I got to cuddle him up and see all that he had been doing while I had been in the hospital.

Grandma found the perfect 2 wheeler at a garage sale and Dan was determined to get Gideon riding, knowing that he was smart enough and had the coordination to do it.  This all took place while I was in the hospital 😦  Dan sent me a video right away of some of his first rides.  I guess Gideon gives all the credit to Josiah because Josiah just told him to get on the bike and ride.  But the best part was getting out of the house!!  It felt so great just to be outside.  But I had no energy and couldn’t really walk anywhere

 

0

My Stay at Chelsea, MHNI Inpatient program: Plan v 10.0-14

April 1st: The first full day was really just getting settled in and getting an IV going in order to deliver medications.  I met with doctors to come up with a plan and the nurses started the infusions that night.  I woke up this morning for the first time with no headache in quite some time and it was lovely. However within an hour or so it was all back. But the relief was great.  Medications in the infusion included: DHE, Singular, Trazadone to help me sleep and Klonopin to help with the anxiety.

April 2nd: I met with the doctors and they came up with the first procedure to try….a bilateral greater occipital Marcaine nerve block.  Even though I had a bilateral occipital nerve block done at Sparrow (which didn’t do anything) during my second hospital stay, they wanted to try it again.  The way they did the procedure was much simpler and less painful than the one at Sparrow.

Meds plan: At the same time taking me off the meds that were not working; Keppra, Neurontin, Elavil.  The Trazadone really helped me sleep last night and it feels great to have deep sleep. It’s been awhile.

Around noon I did some extremely basic yoga in a chair but the movements of the head and neck resulted in a terrible migraine.  I also had a great deal of jaw pain today.  I am coming to the end of day two. They have me on a fair amount of medications for the time being.  Just trying various combos.

The IV Saga Begins: When it was time for the infusions (IV meds) the IV line I had in was really painful so they removed it and had the same problem getting a new IV started, 4 pokes by 3 nurses later and the IV was in and meds were given. Quite a traumatic experience because the head pain was so bad and the infusions aren’t pleasant. However once it was all done, I crashed for two hours, and woke up with a much reduced migraine.
So I keep going and keep trying whatever they have.

IMG_4328

April 4th: More fun with the grandparents at Lego day at the library.  Gideon seems to be having so much fun with Grandma and Grandpa.  Josiah is with dad because he is in school and can’t miss just because I am in the hospital.

April 4th Gideon

Rough day today. Headache has peaked. Just praying they find something that will help.

Let’s go State!!! Man I wish goose bumps didn’t hurt my head because that was an awesome Stars spangled Banner 👍 Go Green Proud to be a spartan. Great elite 8 game and great game today. Stay calm and Sparty On. Now Wisconsin need to represent the Big 10 in the championship game.

March 28th sparty

April 5th: Today is Easter and Dan’s 40th birthday.  Dan arrived just in time to Easter Sunday service.   I was looking forward to communion on this Easter Sunday and even invited Dan to join me. However when the service started it became clear that it was a catholic service where we were not allowed to partake but can receive a blessing because we are not Catholic. I was so very disappointed. Time to simply dive into the Bible this  morning. I know Catholics feel very strongly about this but my feeling is that if you believe that Christ is your Lord and Savior and that he died on the cross for you you should never be banned from taking communion. Nowhere in the Bible does Jesus tell you to turn away those who believe in him. And today I felt turned away, I felt not good enough and shamed as they walk around and only give communion to those who attend a Catholic Church. Whose to say they even believe! I don’t mean to offend I will just never understand how the Catholic Church can set themselves apart when the word Catholic means all embracing.

Aside from my rant earlier I wanted to say a very Happy Easter. Christ is Risen. Christ is Risen indeed!! PTL. I also wanted to say a huge Thank You to my mom Sherry Dunne Weaver and dad Bob Weaver for taken such great care of our kids. For taking them to church and for making a special Easter. I am so bummed that I couldn’t put together their Easter basket, dye eggs and hide them for a fun Easter Egg hunt.

April 3rd Gideon

Thank you, thank you thank you. I love you guys and I don’t know how I would be getting through this rough patch on my life. Oh and I love my new pjs. I already put them on!!

April 5th
And a Huge Thank you to my husband who spent the day with me in the hospital going to an Easter service that meant pretty much nothing.  But at least we got to visit.  He has been so wonderful through all of this.  It is a huge adjustment with me not working and me staying with my mom a lot.  But we are making it through somehow!

April 6th: Here is a good explanation of the procedure I am having done today. And Dr Sapor remains the lead Dr. here at the clinic. I will go I. At about 1:00. Tomorrow I will be having another lumbar puncture. Bring on the prayers my prayer warriors!!

Nerve Blocks : They did a C2, C3, C4 and C5 bilateral facet block.

IV Saga continues: My veins suck and they won’t do a pic line due to high risks with the meds I am on. I have now been poked 14 times that have resulted in 3 iv lines that have all failed and one blood draw. So I currently have no IV and need one for my procedure at 1:00. And to top it off my head is not doing well. Oh and I can’t eat or drink anything so no comfort eating either. On a bright note the day is not likely to get much worse

If anyone is out shopping and finds Cadberry Cream eggs (original) I will pay you back for them. They are my absolute favorite candy on the earth and luckily for me they don’t have coconut oil 😉

April 7th: Heading in for another lumbar puncture very soon. A bit nervous after the last one lead to a spinal headache. They are doing it again because the Hayes Green Beach ER doctor didn’t take pressures which are important to determine whether or not they will have to do another blood patch.

Lumbar puncture/Spinal tap went well: NOT.  I now have another spinal headache. They are awful but at least laying down helps but the underlying headache that got me here is there whether I am standing or sitting.  In other words…it sucks big time!!!!!!!!!!!!!!!!!!

Unfortunately the ice I need to help with swelling from the facet blocks are increases head pain.  But I need the ice to keep the swelling down.  Ugh.

IV Saga Continues: they had to start anther IV today and it took 1 nurse 4 pokes and another 3 to get the line going.  Plus the pain from the first IV has left my right arm very weak and quite painful.

April 8th: Today is a day that I am truly having difficulty praying. Crying comes freely though. So I am needing to lean on my prayer warriors. The spinal tap yesterday resulted in a spinal headache and will now need a blood patch. I am terrified based on my last experience which was horrendous. Rough day but at least the spinal headache is positional which means I get some relief when laying completely flat.

1796446_10152857926397264_9118060956555019173_n

The blood patch is done and I am back in my room. Not nearly as traumatic as the I had done at Hayes Green Beach. The prayers were heard my friends. It resolved the spinal headache immediately which is expected but the migraine has been exacerbated in the process. So hopefully a day of complete rest and we can get back to resolving this damn migraine. Be gone, I say, Be gone!

Hospital war wounds. And my Mickey Mouse shirt got me through it all today!! Well that and God and all of your prayers of course.

There isn’t much to do in a hospital room that doesn’t have wifi that I can’t watch Netflix no my iPad.  So I have been watching MSU basketball (see above) and The Voice.  Come on let’s go Joshua Davis (from Traverse City, MI).

April 9th: Nothing like a tornado warning and being sent to the hospital basement to help my most severe headache of my stay.  I took a blanket and laid on the floor until we had to come back up stairs. There were so many people I just wanted to bolt!

Long day!  They did an X-ray of the neck just to be sure they weren’t missing anything.  The technician was a bitch and was completely unaware that I was about to puke even though I kept telling her that was going to puke.  My legs were giving out and when she grabbed my head she grabbed it at the temples and that resulted in much more pain and nausea.  She just went about her business and that lead to more dizziness and nausea. As far as today goes, it is one of the worst days yet.

I was given a CD with relaxation/meditation…I wasn’t sure at first, but as I listened more I felt comfortable.  Dr. Lake talked me through it the whole way which prevented my mind from wandering.  In fact I don’t think I ever made it through the entire CD before I fell asleep.  So the relaxation part worked very well.

Meds update: The doctors put me back on Prozac and continue to try various abortive medications to try and knock out the migraine, but with the spinal headache is now making it almost impossible to differentiate between the migraine, the headache and the spinal headache

But it was a great day in the end because my mom came to visit, so I didn’t have to be alone through one of the hardest days. Yay for moms who know when their daughters just need them.

April 10th: Today is another day of severe pain that make me wonder if it will ever go away. Meeting with dr now.

They think they put to much blood in during the blood patch so the headache went from not enough fluid to too much fluid. It sounds like they can correct it with meds instead of more surgery. They are also going to give me a day of pain meds. Pretty sure the desperation is becoming more evident every day. I have no idea how you survived for 6 months. All I want to do is sleep.

I’m now on 11 weeks straight of migraine and head pain.  I am at one of the best head/pain clinics in the US and they have no real answers and no resolution. In fact they are resorting to the one thing they only use as a last resort, narcotics. Today I don’t even care about the consequences I just want relief.

It is truly amazing what a shot of Nubain (an analgesic) will do for a person who had been in constant pain for so long. This is not a long term play just a day a relief and I’ll take it. I even took a shower and have friends coming to visit. Things are looking a little bit up today 😉April 10th me again

Visitors: Kristen and Steve and their kiddos came to visit right at the perfect time. It was so great to see them. They have been such a huge support system so it was nice to finally see them in person. The meds kicked in and Kristen and I were actually ableto visit.

After they left I had already walked to the front of the hospital so I decided to do some shopping for the kiddos and for myself. I realized that it had been about 10 weeks since I stepped foot in a store. So the little gift shop, while overpriced, was fun to do some shopping.

April 10th me

April 11th: Depression is quite severe today.

April 9th

This has been me almost the entire day. I sat for about 10 minutes for lunch and another 10 for a late dinner. Head pain is unbelievable, depression is quite severe after learning that the plan for discharge is on Monday. The nausea from the Nubain they have me on for 24hrs was wonderful to have the break but the fall was hard and I slept most of the day. Cried a fair amount. I don’t tell this for sympathy really. Just giving the update So if they really send me home on Monday with no improvement I will head back to my moms and figure out where we go next. I still can’t believe how debilitating a migraine can be and how little people really can understand the chronic nature of it unless they have actually had a migraine that lasts for weeks at a time or gets them daily for days on end. So it has been good to meet a few people that know my pain and how unbelievably disabling they really are. 11 weeks of missing out on everything. 11 weeks passing me by holidays, birthdays, swim meets, Gideon learning to ride his bike, Josiah mastering the wake board. Church, home group, friends, shopping, working, my family in one place enjoying a meal together, seeing my family. And the list goes on. I have been hospitalized for a total of 4 weeks so far and they have no idea how to control this damn migraine. I don’t know where we will go from here which is why the depression has grasped ahold quite tightly.

All the love I got following this post today:

Susie Wilkey Harloff: Sending love your way. I get migraines, but they are knocked out quickly with a Midrin. I can’t even begin to imagine having one for as long as you have. Hang in there.
Dawn Tomlin: It all is sucky! And depressed is normal for what you’re dealing with. I know you are strong and God is your strength. It’s ok to show the dark side of things. No answers and uncertainties would make me depressed too. You will pull through this you will get back to all those things!! I believe there is a way and meds or no meds that headache has got to leave!!! In Jesus name!!! Amen!!!
Nikki Gruesbeck: praying for you Heather! this must be so very hard! Lean hard on Jesus, He is your strength and when we trust in Him no pain is ever wasted. Lord we know that YOU are the GREAT Physician and ALL things are Possible for you. We entrust our sister Heather into your capable hands and ask that you lift her spirit, encourage her as only You can, give her relief from this migraine and impart wisdom to the doctors who are trying to find the cause of this. I pray also that you cover her sweet boys and hubby in your peace and give her back the time ‘the locust have eaten’ because we KNOW that YOU are ABLE! It is in your MIGHTY and POWERFUL name we ask- Amen.
Mindy Richmond: Oh Heather I don’t even know what to say anymore. My heart breaks when I read about all you are missing with your kids and family as I missed a lot when I was in my bad place too. But God restored all that for me in wonderful ways and I know he’ll do that for you too. We are still praying and God is still fighting.
Carrie McHugh David: Heather I feel your pain and do know exactly how you are feeling. I don’t understand why they would release you with no progress or treatment plan. Non migraines I don’t feel understand how disabling these headaches can be. I have missed many of life’s events over the past 7 years. I was really praying that they would have a solution for you. I am 9 days in a row with some type of headache. Very frustrating I know. Please let me know if you need to talk. I will pm you my phone number. Keep the faith and try not to let this get you down.
Kari Alvaro: Oh Heather, I don’t know your pain and I can’t even begin to understand the deep sadness that results from “missing out.” Please know that I am praying for you in groans that only the Holy Spirit can interpret as I continue to ask the Lord of all creation to intervene. We miss you

April 11th

April 12th: Along with all of the positive and encouraging words this morning🙏 I woke up to this sweat guy. Pain level and fatigue continue. Now they are thinking another blood patch possibly. But we won’t be sure until Monday.

April 12th

A much needed note from my mom today: Boys enjoyed church. Gideon’s room sandbox was refilled with rice with some colored rice mixed in. Great idea! Might be idea for downstairs. Kids were loving it. Different feel than sand.  Blood patch does seem reasonable. Take one day at time.  Bob and Josiah off to church to unload and get tables set for books. We will go later. Josiah needed break from Gideon he said. Now that Gideon can keep up with him on bike!!! We will pay Josiah to work today. Did you want us to donate the little bike. No way will Gideon ride it again. Give it to little boy!! Gideon says “I love you””

April 19th

April 13th: Heading into get an MRI of my neck and then at 4:00 I go in for another blood patch. Besides that I sleep a lot. I finally figured out that laying completely flat on my stomach with my head turned to the right I could get some relief.  The blood patch was so bad, but in a very different way than the first one.  I had searing pain between the eyes that has now shifted my head pain to my left side.

And after all of that they are just going to discharge me.  Ugh!  After today’s tests and surgery I will be discharged tomorrow and heading back to my moms house. Life is far from normal yet but I am trying to rely on Jesus. Not all that successfully but at least I am trying. Something has got to work right?

My throat really started to hurt today and I had an awful taste in my mouth, combined with cotton mouth.  Just one more thing.

April 14th: Discharge Day

Settled back in at my moms for the time being. I have a follow up apt on Thursday to meet with a few more drs.  No answers really in fact they started my meeting this morning with “we have no idea what is causing or how to stop this headache but we’re not going to give up.”  So a day at a time is all I can do.  Oh and I left with a very sore throat and lots of gunk on my tongue.  Nurse had no idea what it was, so they just sent me home without figuring out what was wrong.

IV Saga continued throughout my entire stay:  I ended up with 31 needle pokes, lots and lots, of bruising and an arm that is very, very week and that I can hardly touch with anything at all, even a simple brush of my fingers across the arm.

Medications Tried During my 14 day stay:

  1. DHE (dihydroergotamine mesylate)
  2. Lyrica (pregabalin)
  3. Norflex (Orphenadrine)
  4. Prozac (fluoxetine)
  5. Trazaodone
  6. Klonopin (Clonazepam)
  7. Prilosec (Ompeprazole)
  8. Toradol (Ketorolac)
  9. Midrin (Isometheptene cap)
  10. Zanaflex (Tizanidined)
  11. Lioresal (Baclofen)
  12. Flexeril (Cyclobenzaprine)
  13. Skelaxin (Metaxalone)
  14. Robaxin (Methocarbamol)
  15. Zofran (Ondansetrol)
  16. Nubain (analgesic)
  17. Imitrex (Sumatriptan)
  18. Magnesium

List of Meds that I went home on:

  1. Lyrica (preventative)
  2. Prozac
  3. Trazadone (for sleep)
  4. Klonopine (for anxiety)
  5. Prilosec
  6. Toradol (as an abortive): IM injections (fun)
  7. Imitrex (as an abortive)