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Roller Coaster Weeks of May

Week of May 9th: I was still on prednisone until Wednesday.  But I was exhausted every day.  Gideon ended up staying home with a fever Tuesday through Thursday and we pretty much laid around during that time.  My head pain may have been low, but my body was completely out of energy.  So we sat, watching TV, playing on our electronics, napping a lot, even Gideon.  Head pain actually remained low until Saturday, but finally on Wednesday, I got some energy back and so did Gideon, but was still running a low grade fever so I kept him home one more day.  We had a fun day of going to lunch, Walmart, lots of garage sales and then to Miss Tammy’s (his daycare before I lost my job).  Man was I whipped when I got home though.  Friday started my day with a sore throat and pain into the chest.  I was thinking it was a yeast infection from the prednisone especially because I had it down there and on a place on my stomach…so not fun.  I just felt crappy all day.  I tried to go into town, but only lasted an hour and then back to bed for me.  I woke Saturday with a migraine starting but didn’t let that get me down…at least with the help of Imitrex it didn’t get me down.  So we packed in the car and went to a few garage sales and had lunch out.  By Sunday I was completely exhausted and slept almost all day.  Migraine most of the day when I woke in spurts.  I did rally in the evening to get the kitchen cleaned, the boys to clean their bedrooms and bathrooms and organized the laundry to fold and hang…it was really beginning to pile up.

Week of May 16th: Monday in bed all day with a horrible migraine for which I finally had to take a Toradol shot just to take the edge off.  Tuesday I woke with the migraine, but took Amerge ( a Noratriptan that takes quite a while to take effect but works for a long time) and went back to bed until 1:30pm.  I got up showered and felt like I had some energy back again.  I was supposed to meet a friend for a late lunch/ice cream but that fell through, so I13265911_10154115930606897_534315005628657821_n went and ate at Taco Bell for a late lunch by myself.  I ran a few errands and hit Goodwill for a few amazing finds…Body Glove surf suit for Gideon $8 and it fits perfect, white leather Keds for $4 for me which is what I was looking for and a pair of garden shoes for $4 and I love them, they are bright green and make me happy 🙂 And then went crazy and folded all the laundry, hung up hanging clothes put it all away..and if that wasn’t enough I emptied out my entire closet to make room for all of  my clothes that not only fit but were some amazing garage sale finds and to make room for my new addiction: LulaRoe.

The rest of this week is a mystery to me really.  I woke up on Wednesday with a great deal of energy and very little head pain (1/2).  So I called my friend Mindy and we went to lunch and hung out all afternoon and chatted all day.  Then in the evening the family went to Josiah’s school for a walk-a-thon type thing and I walked 1 1/2 miles.  I was so scared…I knew I would end up with a migraine that night or the next morning, but the mystery is…I didn’t.

So Thursday I woke up feeling ready for the day and spent the entire afternoon with my friend Carrie, hitting garage sales and Meijer towards the end of the day.  Friday I went to Josiah’s field day at school for 3 hours which was so much fun and I am so glad I was able to go and participate in something this year with the schools.

Then went to ready care because a pain in my neck, possibly lymph nodes had been bothering me, he put me on antibiotics and sent me on my way. I slept until 3:30, visited with my parents and then we all headed in to Gideon’s school for his school Carnival. And again I was so pleased and excited that I got to participate in something with the kids for their school.

Little to no head pain all day and into the evening.  I did do a Toradol shot, but that is because my body was aching 🙂  Then my parents took the kids and Dan and I just hung out all weekend, hitting a few garage sales.  Saturday night we hung out with our friends Stephanie and Jared until 1:30 in the morning.  Still no head pain.  I was even wearing my regular glasses without the tint.

Same for Sunday…I did have a bad reaction to food, but other than that another great day.  It’s a mystery!  I was actually having feelings of guilt because I had gone so long without a migraine.  How weird is that?  I was also very confused…was this going to last, was the medicine working, I just didn’t know.

Week of May 23rd: Monday was another great day.  I spent most of the day relaxing at home though just in case.  But it was nice and quiet and had no responsibilities that day and that felt good..no where to go!  Then as I was on FB a notification came up from one of the virtual garage sale sites and I just happened to click on it.  It was a piece of property.  10 acres of land, with great hunting potential.  I contacted the owner and asked if we could take a look at the property.  So after we had all eaten, we headed out 14.5 miles from our house was this beautiful piece of land.  Oh my goodness, we were instantly in love.  Rolling hills, woods, the view, the potential to maybe build some day, photography potential.  So we walked all the way to the back of the property which was quite long.  When we got to the wooded area it was tough to walk because of all the prickers, so Josiah and I chose a different path and we ended up in the swamp.  It took all of my energy to get to the back of the property and then I was digging for extra energy to get back.  We saw 4 deer and a rabbit in our short time there.  The sun was setting and we were in love.  We didn’t really think about how we would pay for the land, just how beautiful it was and the potential it had.

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And then I had no more guilt, I knew the answer to the questions I was asking myself…the13241196_10154132262611897_3871821648081814738_n head pain returned and with a vengeance.  Ugh.  I went to bed with the pain rising and woke with the head pain at a 5.  I took an Imitrex and went back to bed because I had a hair apt later that day and of course I had to make it 🙂  By the time I 13233015_468205046703984_2698938692415491479_ngot home the meds were worn off and I was back to bed and in bed all day Wed and Thursday.  Friday, I woke with the migraine still, but took Amerge because I was done with the pain.  Luckily by 1:30 when I woke up the meds had done their job.  So I went in to town to see the back about financing the property (after chatting with Jennifer our realtor, she told us that there was a possibility of financing and I made some calls and found out that was indeed true).  I got all the information about getting pre approved for the loan and what it would take to get the loan.  20% down…ugh.  If we got the property for $32,000 with realtor fees we would need $7000 to put down.  No idea really how that could happen.  So I put that aside and started driving until I found a garage sale sign which lead me over towards the property.  I decided to go look at it again.  When I got out of the car, I felt this amazing peace.  So I decided to pray about this property and if it was to be in our future or not and to please make it clear 😉  One can always ask!  And wouldn’t you know it, when I left the property, 2 houses down there was a garage sale.  If you know me, or have at the very least read this thread, I love to garage sale.  It must be a sign, right?  🙂  hehe j/k  I won’t disregard it, but I won’t put an offer in based upon that “sign” 🙂  I picked up the kids from school (a treat since they have to ride the bus and walk home) and then picked up pizza.  My parents met us at the house and took the kids off for the weekend.  After they left, Dan and I sat out front and just enjoyed the peace and quiet and listened to the birds and talked about our day without interruption.  And then the guy next door started mowing…inside I go.  Allergies are kicking my butt this year.  So now to spend Memorial Day weekend however it takes us.  But I will gather all the necessary documents needed for the pre approval for sure.

 

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My New Normal takes a Turn in the Road

1/31/16 The past few days have been quite a roller coaster.  And though this post is mostly about food intolerance, there is a possibility there is a link between my migraines and food sensitivities.

I had a migraine every day last week and by Thursday night I had run out of abortive medications and was still in migraine mode, only without anymore pain relievers.  So I used what I had in my migraine toolbox to help manage the pain the best I could: dark, quiet, my new IceKap and my iPad with an ear bud to minimize sound and distract my brain from the pain.

Thursday was also the day I picked up the results of my food sensitivities and intolerance.  My first response was “there is no way my mind can take this in with this kind of head pain and I am on my way to get my hair done”.  So I set it aside and mentioned a few brief things to Dan.  And then I went in my bedroom because my head was killing me and decided to compare my list of no-no foods to my stocked Crave Cave.  I can no longer eat any of them.  Then I came out to the cupboards and could find nothing that I could eat that didn’t have at least one ingredient from the list.  Then I started swearing, throwing things, crying…you name the emotion, I likely felt it except all the happy ones of course.

12651188_10153830137376897_9210018167551688087_nFriday sucked as much because I was still mad and now becoming very depressed because I didn’t know what to eat.  So I ate nothing for breakfast, a cheese stick for lunch and a tortilla for dinner.  The worst part of the day though was that my migraine was not only awful, but the light sensitivity was awful and it was extremely bright outside and I had to pick up the kids; Gideon from the bus stop, no big deal and then Josiah from school because Dan forgot about him and had to work late.  So the picture here is of me trying to drive with an awful migraine while trying to block the sun out of my right eye where I was already being stabbed from the inside.  But it really demonstrates how I really felt as well.

And now onto my main point of this entire blog post, the Food Intolerance/Food Sensitivity testing and what in the world I am going to do and eat for the foreseeable future.

Food Allergies: Here is the list of allergies that my family and I have been learning to live with since June of 2014.   Actual allergies measured by IgE enzyme may or may not show up on the food tolerance testing but a few did show up on both lists* (and this turned our families life upside down, but not begin to compare to the upheaval it will take in the coming months):

  1. Peanuts
  2. Almonds
  3. Walnuts*
  4. Pistachio*
  5. Coconut
  6. Avacado
  7. Cherry
  8. Melons*

 Severe intolerance: (which means these foods should be avoided for a minimum of 6 months):

  1. Anchovy (which I thought no big deal at first until I read that you find it in soy sauce and Worcestershire sauce and other fish sauces…possibly even Fish Oil supplements.
  2. Baker’s Yeast (which is in EVERYTHING, well just about anyway.  All breads of course, processed foods, crackers and many broths)
  3. Kale (which shouldn’t be a problem because I have not acquired a taste for it and we never buy it)
  4. Lentil Bean (something we enjoy making once in awhile in our house, but we can do without easy enough)
  5. Licorice (the flavor is found in a variety of candies, soft drinks, herbal teas and cough syrup)
  6. Portabello Mushrooms (Something I really like but we rarely ever buy them, so this shouldn’t be too hard to avoid)
  7. Zucchini squash (I do love zucchini bread and we finally found a way we love to cook it on the grill, but again, not really a hidden ingredient and it will just have to make it’s way off my to eat list.
  8. BHA (These are often added to foods to preserve fats and is found in butter, meats, cereals, chewing gum, baked goods, snack foods, dehydrated potatoes and beer.

Moderate Interolerance (which means these foods should be avoided for 3-6 months)

  1. Acorn squash
  2. Apricot
  3. Basil
  4. Bok Choy
  5. Cayenne Pepper
  6. Clove
  7. Fennel Seed
  8. High fructose corn syrup
  9. Green pea
  10. Honey
  11. Honey Dew melon
  12. Kelp
  13. Kidney bean
  14. Lima bean
  15. Mung bean
  16. Red Beet
  17. Safflower
  18. Scallions
  19. Watercress
  20. Citric Acid
  21. Green dye #3
  22. Acai Berry
  23. Glucosamine
  24. Goldenseal
  25. Grape seed Extract
  26. Huperzine
  27. Resveratrol
  28. Spirulina
  29. Ammonium Chloride
  30. Ampicillin (my doctors thought I might have a slight reaction to penicillin when I was young because I broke out in a rash, but I have had the z-pack since??)
  31. Piroxicam (not sure what medication this is?)

Mild Intolerance (which means these foods should be avoided)

  1. Black beans-so sad 😦
  2. Blueberry-my favorite fruit 😦
  3. Cannellini beans
  4. Cantaloupe
  5. Cauliflower
  6. Chia
  7. Chick pea (but I love humus)
  8. Chicory
  9. Chives
  10. Cinnamon
  11. Cocoa
  12. Cucumber
  13. Cumin
  14. Dandelion Leaf
  15. Date
  16. Egg Yolk
  17. Grape
  18. Guava
  19. Mango
  20. Mulberry
  21. Nutmeg
  22. Gluten free oat
  23. Paprika
  24. Peppermin
  25. Persimmon
  26. Pistachio
  27. Pomegranate
  28. Psyllium
  29. Radish
  30. Sesame
  31. Spearmint
  32. Sunflower
  33. Turnip
  34. Wakame seawee
  35. Walnut
  36. Yellow Squash
  37. Cane sugar
  38. Maple sugar
  39. Barley
  40. Malt
  41. Rye
  42. Spelt
  43. Wheat
  44. Gliadin
  45. Agave
  46. Ashwaganha (wah?)
  47. Barley Grass
  48. Chlorella
  49. Chondroitin
  50. Elderberry
  51. Essiac
  52. Goji Berry
  53. Milk Thistle
  54. Mullein Leaf
  55. Rooibos tea
  56. Benzoic Acid
  57. Brilliant Black
  58. Red #4 Carmine
  59. Red #40 Allura red
  60. Nickel Sulfate
  61. Aspirin
  62. Ibuprofen
  63. Aleve
  64. Neomysin
  65. Penisillamine
  66. Tetracycline
  67. Voltaren??

SO WHAT THE HELL AM I SUPPOSED TO EAT!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

They gave me a food rotation list, but I am still not sure how that works.  The test results came with a 30 minute call to a nutritionist that may be able to help me get on the right path.  And then they gave me the list of Foods to Avoid:

  1. Acorn squash
  2. Anchovy
  3. Apricot
  4. Baker’s Yeast
  5. Basil
  6. Bok Choy
  7. Cayenne Pepper
  8. Clove
  9. Fennel Seed
  10. High Fructose corn syrup, better known as Corn Syrup or Fructose
  11. Green pea
  12. Honey
  13. Honeydew melon
  14. Kale
  15. Kelp
  16. Kidney Bean
  17. Lentil Bean
  18. Licorice
  19. Lima Bean
  20. Mung Bean
  21. Portobello Mushroom
  22. Red Beet
  23. Safflower (oil and margarine, also in diet mayo and diet salad dressing)
  24. Scallions
  25. Watercress (a main ingredient in V8)
  26. Zucchini

So in the end I have no idea how I will even begin to manage this and it won’t come easily or quickly…but it sure might explain why my stomach or lower abdomen hurts to some extent daily.  And then I have flair ups that the doctors have always just deemed IBS (which I believe I do have symptoms of that as well, but still).  Part of me wishes that I never took this test, that I never knew the results because they make me angry and I feel like I can’t eat anything.  So I have had much grieving over the past few days and not eating.  Dan tried to pick up a few things at the store for me, but when you are only looking for a few of the issues, there seems to be 5 other ingredients that are on this list.  But he is trying.  He also made us steamed fresh broccoli, ham steaks (that had no indication of additives that I couldn’t have) and plain white rice with a little salt.)  And it felt good to know that there was a meal that I could possibly eat.  And to know that I have a spouse on my side (like he has been through it all).

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I go to my Head Pain doctors on Tuesday and I am going to ask him he thinks that it is worthwhile to test for Celiac Disease.  I read an article about the relation of having a food allergy to Baker’s Yeast and CD and though I have not been tested for the food allergy I at least have some basis to be tested.  Headaches, fatigue, acid reflux, etc are also symptoms of CD.  So it might not hurt to at least get tested at this point.