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Mother’s Day Weekend

It was such a blessing to spend so much time with my family but it was a very surreal weekend this Mother’s Day Weekend. It was as if I got to step out of my sluggish body and head pain ridden ornery self and got to be this happy, fun LulaRoe legging wearing, master garage saling woman this weekend. It was magical.

Friday night: I love that Gideon is still young enough for back rubs and snuggles. The best way to spend quality mother/son time for me…the hugs are healing and he loves his back rubbed…it just happens that he falls asleep very quickly when I do rub his back, so I just held him.  He will not be small enough much longer to do this.

Saturday we all hung out for the morning and then went in to town to garage sale and man did we hit a ton of sales (see Garage Sale Addiction Post for more on that).  Gideon ended up with 2 of the best things; a 4 piece suit which he loved and had to put on right away when we got home and a game with many interesting additions to the box.   As soon as he put on his suit he had me taking video of him doing dance moves…very funny!  And then my mom asked if I got any pictures of him in his new suit…good thinking mom.  No I hadn’t, but I was still up for a few pictures and he was so excited to have his pictures taken that I definitely took the opportunity to do so!

Sunday morning @ 7:30 I was woken up very quietly to ask help buttoning up Gideon’s pants, then shirt, then vest of his 4 piece suit.  After he was all dressed he climbed into bed and played on his ipad, making me a new season 😉

I came out to the living room around 10:00 and Gideon was right there asking to play one of his new games from a garage sale.  As far as the game goes, all the pieces were there but 1, so that is pretty good for a used kids game…but it was all the extra stuff that was in the box that was so strange:IMG_8589[1]

  • a little gun
  • instructions for a roku
  • a used pencil top erasure
  • AA battery
  • AAA battery
  • paper clip
  • 2 fake fingernails
  • paddle and ball
  • wrapper for a cough drop
  • 2 rubber bands
  • string
  • a piece of wood
  • metal tool of some sort

After playing the game for a little while I asked Gideon if he wanted me to cut his hair because he had been asking for a short hair cut, so I got the clippers out, got him into play clothes, and cut his hair. He was definitely due!  And I was so glad I felt good enough to cut it!

He said he was going to wear to wear his suit today and he did, but he had to have a bow tie, so after his hair cut I took him to my photo props and found him a bow tie.  Then I sent him to the shower and he got his suit and bow tie back on.  It was Mother’s Day after all.  He made me want to dress up a bit too 😉  Then we had to take pictures with his new hair cut and with the bow tie…it was so wonderful to feel well enough to be able to do so.  Josiah didn’t want a hair cut or his picture taken!   Growing up!

Josiah shows me his love is ways that can’t often be photographed and he is getting old enough that he isn’t always up for pictures for fun. He prays for me every night, he gives hugs and is always concerned about me. I have been blessed with two very living children. What more could a mother ask for 😘💕

It was a wonderful weekend.  We went garage saling, shopping and out to dinner.  But even better I got to be a mom, a photographer, a hair cutter, a mom, a photographer, a garage saler and a mom and it was delightful!

And then we were all tuckered out from a fun long weekend of Migraine free mom!

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Happy Mother’s Day to me and to my mom!

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Garage Sale Addict/LulaRoe Addict

Apparently when I feel well I tend to shop: both online and at garage sales.  I have always loved garage sales and auctions ever since I was little.  And it has been such a bummer that I haven’t been able to go much last summer.  Online shopping for LulaRoe is a new addiction but it is also difficult to do when I have migraine.  So much to scroll through, so much to look at that it is overwhelming.  But this weekend I was taking prednisone for a 5 day booster pack to give myself a break from constant pain.  That didn’t quite work out the way I was hoping, but with the help of my abortive Imitrex I was able to both shop online and go to garage sales all day Saturday and back to one on Sunday.

The first group of sales, flea markets and goodwill stops that I made, I scored big time with 18 dress shirts, 1 maxi dress, 5 summer dresses, 4 knee length skirts, 1 scarf, 1 sweatshirt, 2 Capri pants, a pair of jeans, and 2 pajama shirts…bring on summer.  35 items for $60.  Now I just need to feel well to wear them.

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Then on Saturday we hit a huge Subdivision Sale and went to probably 25 sales, but one of them was a super hit for me: I got 6 camisoles, 12 dress shirts all Lane Bryant $13 total. Happy Mothers Day to me! I Guess I better start looking for more pants 😀 But I definitely need to empty my closet to make room.

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And then just in case, since they had so many clothes still left, I asked if we could go to the sale on Sunday…it was Mother’s day after all 🙂  And sure enough they were just packing up, but they let me look through everything again.  This time I ended up with: 2 capri pants, 2 dress pants, 1 pair of jeans, 12 sweater tanks of all colors and sizes, 6 more really cute tops and 6 sweaters/cardigans for a total of $23.

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Now I need to clean out my closet to make room for all of these fun new clothes.  I could have put together so many wardrobes together this weekend for adult men/women and kids. What an awesome subdivision sale!!

AND THEN CAME LULAROE: I was gifted a pair back in April and I wore them all of the time.  Well last week I was invited to an online party for Lularoe and I thought I would check it out.  My friend Mindy and cousin Teresa also joined me…we had so much fun chatting and showing either other what we got.  My first 3 leggings LOVE them:

And then there was another sale during the week last week and I bought two more pair of leggings:

Should I have stopped, yep!  But I was feeling so well over the weekend and there was a huge 30 vendor online sale that I bought 2 more leggings and a maxi skirt:

AND NOW I HAVE TO STOP!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!  Although I can’t wait to get them in the mail 🙂

So the next time I feel well again, I will have to go through my entire closet and clean it out.  Soooo many clothes that don’t fit anymore since Migraine hit and so many old clothes with holes.  It’s time for a fresh start.  Luckily my mom loves organizing as much as I do…just need to find a time when I am not down with migraine and my dresser won’t look like this anymore:

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Not posting for days can mean…..

2/10/2016

  1. That I have been completely down with Migraines and just can’t get to my computer to post anything

or

2. I have not had a single migraine and I have been busy doing things like laundry, packing for a trip, running errands and taking care of a sick kid.

Luckily for me and my family I had a nice long stretch without a migraine…6 whole days!  This was the longest stretch I have had without pain medication, nerve blocks, facet blocks, etc. and no migraine.  The daily head pain was there the entire time, but at a very low level and there were even periods of time where I didn’t even notice the headache.  I felt very fortunate that I was able to be with Gideon during his week off of school (even though my increase in meds made me incredible tired).  Luckily Gideon loves to just hang out and watch cartoons and YouTube videos.  If we weren’t running errands, we were hanging out in bed watching videos.  Gideon was finally feeling better by the end of the week and went back to school on Monday…I think we were both ready for that!  With the addition of Flexeril as a nightly preventative med and increasing my Robaxon (both muscle relaxers) I slept a lot this week.  But when I was awake, I had huge bursts of energy and was able to do laundry and pack bit by bit for our trip to FL.

My migraine free days came to an end last night.  And when it came to an end, it resulted in 0-5, full blown migraine in the matter of about 10 minutes.  The only triggers that I can think of was talking on the phone and computer time balancing my checkbook.  At any rate I went straight to bed. I woke up at 3:30 am and the migraine was still raging, but I didn’t want to take any medication if I could get back to sleep.  So I put my IceKap on with nice cool gel packs and was able to fall asleep, waking up on and off, for 2 more hours.  When I woke at 5:30 am I couldn’t handle the pain anymore, so I tried Imitrex first because I was suffering from both the classic migraine (stabbing pain over the eye) and the tension migraine (Pressure and swelling around my entire head).  Imitrex barely touched it, so after a half an hour, I changed out my gel packs for cool ones, and did my morning medications plus the migraine cocktail (Toradolx2, benedrylx2 and Robaxonx2 was already part of my morning meds).  An hour later, the migraine was completely gone and I was able to complete all of my tasks that I needed to accomplish today; safety recalls taken care of my van (and we got 2 bran new key fobs…so exciting), shopping and lunch with my friend Mindy and one of the longest oil changes ever, but at least the car is all set for the big trip tomorrow.

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And now that we are pretty much packed, with the exception of the last minute stuff, I could use lots of prayers as we travel 15 hours.  Just hoping and praying for low to no head pain…but I packed my arsenal of abortive meds if I do end up with one…so I feel prepared.  We pick the boys up after school and head straight out!  We are all pretty excited!!  Just a quick picture to leave you with from our last trip to Destin, Fl…such a beautiful place!  I can’t wait to go for a walk along the beach 😉

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MHNI Visit #13

2/2/2016 Yesterday I had my follow up with my Dr’s at MHNI yesterday.

I woke with a full blown migraine. I took my morning meds and an IMITREX, put my IceKap on and slept for an hour. When I woke up I felt so much better, thank goodness, because I had no idea how I would make it through the day.  Gideon took all of his meds like a champion this morning (thank goodness). He had to go with us to the Dr. appointments because he couldn’t go to school, I couldn’t drive and we didn’t want to expose anyone else to his multiple illnesses.  So he got to hang out in the car with us for the day. He is all set with electronics, movies and his new little stuffed animal. Then as we went to all get in the car, we had locked our one and only set of keys in the car. Luckily Dan is a pretty handy guy and we still had a metal hanger. Car unlocked, and only 15 minutes late. Then I downed some ice tea (caffeine) to further help knock out the migraine.

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My neurologist changed the triptan I was on (Imitrex) to a triptan called Amerge for an abortive med for the classic migraine, hoping it will have less side effects.   We also discussed adding Flexeril to my preventative meds for NDPH. He had read an article that people with NDPH have had great success with Flexeril, so I will be starting that tomorrow.  We will see how it goes. It is a low dose so hopefully I won’t have to many side effects.  The last change to my meds is to increase my migraine preventative medication, Robaxon to its maximum dosage to see if I had any better luck at a higher dose.  At my next office visit if my migraines haven’t gotten any better, we will try a new preventative med.  I didn’t want to add a new medication before our vacation. If the increase in this med doesn’t work, we try another at another at my next appointment. The goal is to find a med that will break the cycle of the migraines and NDPH and prevent further head pain. I also now have the option to make an apt for nerve blocks in my temples as needed every 6 weeks which thus far has been a miracle block.  I get an entire week of pain free.

2/3/2016 Today Gideon and I had a whirlwind day.  Josiah had a delay in school, so we drove him to school, so Gideon and I went to CVS to return our late Red box movies..ugh, we have to stop doing that!  And then I realized I forgot my prescriptions…ugh again!  We did manage to get to the post office to resend for the 3rd time documents to SSDI…ugh why do they keep losing my paperwork.  We drove back home to get the prescriptions…ugh.  Went back to CVS and then headed to Eaton Rapids for lunch with Dawn at McDonalds…Gideon was so excited!  Then a follow up with his Dr.  He is still full of illness 😦  Double ear infection still, swollen glands, sinuses completely blocked up.  So she prescribed prednisone to help all of the swelling (Is it bad that I want to keep the prednisone for myself 😛 and no I gave the steroid to Gideon.  He is feeling better, but just the energy level!  The rest of his little body still hurts.

Once we got home I passed out with a migraine on my left side (very unusual for me, most of my migraines are on the right side).  Still have a mild migraine but a good day overall.

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Imitrex…Side Effects

1/28/16 I HATE IMITREX!  The side effects are so awful that I just don’t like to take it. My heart begins to race, my chest tightens, my throat constricts making it t difficult to breath. HOWEVER, it seems to be the drug that actually helps knock down the migraine that occurs over my right eye, the classic migraine that I fight often. I’m not sure how long the good effects last because I am starting to feel it creep back up, but it’s something.   BUT DID I TELL YOU THAT I HATE IMITREX. Why does the medication that causes the most terrible side effects have to be the one that may help with the migraine. Ugh!  But I am thankful that there are a few options out there now to treat the different types of migraines that I suffer from.  Some people don’t even have that, so I shouldn’t be complaining.  When I looked up my side effects though, it says to discontinue and to seek immediate medical help because the medication also has the side effect of heart problems that can be masked by the side effects I am having, so I would have no idea if I was in real trouble.

So in the mean time I will take Imitrex if I feel a classic migraine coming on.  Prednisone will be reserved for long trips or very important events for the time being and Toradol and Robaxon work well to manage the tension migraines and New Daily persistent Headaches.  I feel like I am gaining a little bit of control over this demon, but am a long ways from finding the medication that prevents the migraines/head pain/headaches from happening.  One step at a time.  I go back to MHNI next Tuesday to work on a new plan of attack.  I have ideas and am learning so much about my migraines and patterns through writing this blog, that I feel like I am finally putting the pieces of a puzzle together.  And though it is far from complete at least the outside edges are getting closer to being done.

All I know is that because of Imitrex I was able to pick up my son from school when he called saying that his thumb really hurt, run errands and take him to the Dr. in E. Lansing yesterday and this is all after waking with a migraine and not being sure if I would make it out of bed.

I am glad we were able to get in to Josiah’s Dr. yesterday though because the splint they put him in at the Emergency Room was really cutting off the circulation and causing a great deal of swelling even after we had already loosened it.  They also determined that the fracture that the ER dr. saw wasn’t really a fracture.  But because of the bruising and the areas the hand and thumb are sensitive, they said he likely sprained it pretty bad.  We go back in 2 weeks to find out how he is feeling, but for now he loves his new Spiderman boot splint in his favorite color!!  It is pretty cool if I might say so myself.  He can take it off to take a bath, but for now he keeps it on all the time.  When you just look at the splint it looks like any other, but it is actually hard and formed to his hand just like a cast, but this one can be removed.  He was happy and the swelling went down rather quickly.  So hopefully the pain will go down too 🙂

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Big Day

6/15/2015 Monday’s are great!  I went to McDonalds (and not in the play room) to relax alone while waiting for a script to be filled. After a crazy and emotional week last week it feels wonderful to be alone and peaceful.

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Since I was feeling well all morning I went off to Walmart to do some shopping.  I was doing well but then fatigue hit, so I had to sit in the shoe dept and rest.  Fatigue is a pain in the butt.  Just when I think I am getting ahead, then I am knocked back down.

Then Gideon and I had dentist appointments tonight.  Gideon was really excited about first dental visit and he did awesome.  I was feeling nothing but anxiety about the sounds and pain I would likely feel so I did a Toradol shot in the dentists office.  By the end I was exhausted and ready to go home and to bed.

Tuesday: The following day I spent the day in bed resting and recovering from the Big Day on Monday.  I slept for 14 hours and when I did wake I had bad blurred vision and double vision.

Wednesday: Another bad head pain day.  In bed again all day.  I finally tried Imitrex and the side effects were awful.  Within about 10 minutes of taking the medication my head started to constrict…which sucks when your head already hurts.  Even though there were terrible side effects, at least it reduced the head pain.  But not likely to take it again.

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MHNI Visit #5

Mother/Daughter day aka more Dr apts. We tried a new restaurant out today and are having lunch between apts at Noodles and company.

Really the only changes that occurred today were that Lyrica was increased to 150 mg a day and Imitrex 100 mg was added as an abortive medication.

I did receive the Doctor notes from my pain psychologist and it is always interesting to see what I talk about and what I am stressed about, etc.

Medical notes from Dr. Lake

Headaches: Mixed experience with headaches since RFA procedure with Dr. Shamas on 5/22/15.  She had some significant improvement within about a week of the RFA which would be unusual as a direct result of the RFA.  At that point she began doing more when the pain level was at a low range (1-2 on a 5 point scale), may have done too much, her headaches escalated, and she began to back off on the level of activity.  More recently in the past 2 1/2 weeks there has been mixed ups and downs with some severe headaches back up to the incapacitating level, but she understands this is still quite early to determine the efficacy of the RFA procedure – we would not respect significant results this early.

Botox: It was her understanding it would be scheduled today with Dr. Da Silva.  I am giving her chart to our charge nurse to confirm that the product is available and planned for today’s visit although that does clearly appear to be Dr. Da Silva’s intention in documentation of the chart (unfortunately Heather informed in a passing conversation with me at the end of the day that her insurance will not cover Botox at this time – I did not have an opportunity to explore that further).

Return to Work Issues: We faxed the FMLA forms that she had given us to her work Human Resources group on 5/22/15.  Heather informed me today that although we had extended her return to work date until 8/16/15, her work has given her another form different than the last one that they insist must be completed today.  I am arranging for her to talk with Margaret in our medical records group to review the form and determine what might be reasonable in terms of communicating with them and actually completing this.  To get this kind of form completed on the day she is seen here is not a reasonable expectation, but she will show it to Dr. Da Silva and get his overall view of it.  I do not believe she is in any position to sustain a successful return to her former job at this time and we will need to reassess in early August if it would be possible for her to return to work by 8/16/15.

Carpal tunnel syndrome: She has had some episodes of significant carpal tunnel symptoms in the past, and has carpal tunnel braces that she wears when symptoms flare.  Normally she does not wear it.  She had some issues with her right arm that she addressed by wearing the brace continuously for a period of time, and function and appearance improved significantly.  I encouraged her to consider wearing the brace routinely at night, to minimize any low-end RE:incipient irritations of the nerve.  This is particularly critical both in terms of her work as a microbiologist but also in terms of her alternative potential employment as a photographer since she holds the camera with her right hand that is difficult when the carpal tunnel is acting up.  She has however taken some pictures recently of her kids showing me the change from the first and last day of school and a recent haircut and is trying to be more active in general.

Functioning: She stated she is trying to do more walking and other activities when she feels better, trying to find the right balance between overextending herself as noted above when she had those 5 good days in a row shortly after the RFA.

Cognitive functioning: She continues to report some words switching such as telling her kids “load the refrigerator” when she meant loading the dishwasher.  Although she has had occasional examples of this occurring in the past, the frequency is now several times a day, and appears correlated with increasing her dose of Lyrica.  She states when she does at the beginning of the week it is more noticeable and appears to improve a bit as the week progresses.  She is currently at 125 mg twice a day and will be titrating to Dr. Da Silva’s recommended 150 mg twice a day.  She is not sure at this point how much Lyrica is helping her.  She did report some similar kids of issues at my last session with her before the RFA procedure.

Adherence with relaxation and biofeedback techniques: Excellent.  We did not have an opportunity to review some of that in session today but she gave me examples of using the techniques on an ongoing basis as well as helping herself relax as she goes through the physical therapy procedures with her neck which she feels is helping improve range of motion function as well.  She will see our physical therapist Andrea Sherman later today and request another physical therapy prescription.