I keep forgetting to post the results from testing done at Mayo Clinic. They all came back normal. So still no answers but in the long run it’s good that I don’t have cancer in the brain or spine or any of the incurable autoimmune diseases. But it’s been pretty rough week with the weather patterns the way they’ve been. So I still keep trudging along taking each migraine as they come. Finally over a 72 hr migraine…abortive meds were not helpful throughout this one. No changes yet with new meds because it will take 8 weeks to get to the target dose and then another 5-6 weeks to know whether or not it’s working. If it works AWESOME, if not I go back to Mayo in August. I will start the prednisone break on June 10th so that I am able to be there for my 2 boys over at least two of the summer months. We already have a week long trip to Florida in June and hopefully we will be able to do some camping during the break. I am also aware of the possible risks of prednisone and one of them is Headache, so hopefully that doesn’t happen to me. And increased acid reflux, so hopefully the meds I am on for reflux will continue to keep it under control. The side effects long term will have to be dealt with in the long term.
So for now I deal with the side effects of Neurontin: fatigue (both mental and physical). But hopefully as soon as I make it to the target dose and stay on it for a little while my body will adust. More importantly I hope it works!