This post is just to get me back to my blog. It has been entirely too long and there is so much to catch up on. I tend to do things gung ho for a period of time and then burn out and that is exactly what happened with my blog. I am really hoping to get back to it, especially during this time of reprieve.
Just a quick migraine recap…I went to Mayo and they put me on Neurontin stepping me up to 2400mg/day. I successfully made that step up and had my first 8 day window with no migraine and then it came back full force. I was also prescribed prednisone for 2 months starting at 80mg/day for a week and stepping down 10mg per week. I started the prednisone on June 8th and have been on it for 22 days. And let me tell you I FEEL FANTASTIC!!! I feel like I could do anything, go anywhere, be anyone, etc. I even went Jet skiing for the first time which by the way brought on a major migraine regardless of all the meds I am on…so I still have to be careful.
But the one thing I am so very much enjoying is reconnecting with my husband and 2 kids. They have missed me and I have missed them and it wasn’t until I started the prednisone that it truly sunk in that I have been completely absent from their lives for the past year and a half. Yes, I made veiled attempts to be with them in the same room, but there was always this anxiety that a sound they would make would trigger a migraine, so I could never be fully present with them. And now I am able to snuggle, spend time with and not be the snarky mom I have been for the past year. Yes I still get frustrated with my 5 and 10 year old of course, but I don’t feel like I am going to strangle their necks because they dropped a marble on the floor.
I just feel happy! I don’t think you can truly understand happiness and joy unless you have had it taken away and for that I can be thankful for the trials and tribulations I have been through over the course of the past year and a half.
I don’t look forward to the end of the prednisone trial (2 months), but at the same time I really don’t think about it much because I am truly able to live in the moment and feel happiness and relief.
I have lots to catch you up on: end of year school activities I got to partake in, vacation, dealing with migraine and kids on summer break fears and so much more. So keep an eye out for more to come! Sorry for the hiatus but it is good to be back!!!
I took a nice long break from my blog while I was on vacation in Florida. Mostly because the beginning of the vacation was dealing with head pain and migraines and fatigue that I never got on my computer and the second half of the vacation was spent keeping my little man, Gideon, comfortable because he became sick on Tuesday (the day I finally got medicine that would allow me to have more energy and less head pain, prednisone). All in all we did make lots and lots of fun memories and have so many pictures of course that I am sure we will look back on this vacation with many happy memories.
Then we got home late Sunday night got the car unloaded, unwound and went to bed. Monday I spent the entire day in the ER with Gideon…luckily his fever broke and he is doing much better, but he has been home with me all week. Now it is looking like both boys will be home tomorrow and maybe Friday for a snow day. Guess I am going to have to wait until next week to truly unwind.
The one thing I have to say about vacation with migraine is not as I expected. I think I was expecting to go on vacation and everything would be great…a vacation from migraine because I said so…but it was not so. So “My Family’s New Normal” keeps taking shape. Everything was so much better when I fought to get a script for prednisone though…I was finally able to have the vacation from migraine and life 🙂 It was also very well timed so that I could take care of Gideon as well.
In the days to come I will write a few posts about my vacation and post a few pics! But I am looking forward to having things wind down here at home. Unfortunately with a winter storm comes more head pain. Migraine started as soon as I awoke this morning. Might be a long rest of the week and weekend!
That’s all for now folks!
On Sunday the weather turned really terrible and we are currently stuck in the UP due to 65mph winds at the bridge which closed the bridge down. So we called the hotel where we were staying and asked if we could just come back and hang out for a few hours.
And now we’re stuck in another traffic jam. We’ve been at a stand still for almost an hour. No idea what’s going on. Ugh!!
Update: make that 2 1/2 hrs and now we are out in the boon docks with trees all around us just north of Roscommon. The two really impressive pictures were taken over by Traverse City…Extremely scary storm.
When we got home I got out and took some pictures of the tremendous lightening. Very little rain, still have power and had a little fun with the lightening cam while I unwound from the trip!
Mackinaw Bridge is closed so why not go to Mystery Spot. Unfortunately the line had not gotten any shorter when we were done at the Mystery spot, now it is just putzing along.
Setting in for the weekend in St. Ignace. And it happens to be a convention of Mini Cooper drivers. They are planning on setting a record of Mini Coopers on the Mackinaw bridge followed by a festival. We got the last room in St. Ignace and it happens to be full kitchen suite with a bedroom where the kids can actually be put to bed. Great adventures had but looking forward to relaxing a bit a enjoying the pool and taking a nap tomorrow. Kind of like being back in Canada. We did all the hiking and walking which lead to pretty severe head pain but now that we are relaxing with no plans and nothing that we have to see my head pain has diminished again. Hope it stays that way.
On Saturday morning I woke with minor head pain and went swimming. After I took a nap, we went for a walk around town which landed me in bed and down for the rest of the night. Luckily I woke the following morning with minimal head pain, but the storm brought it all to a head again Sunday during our crazy drive home.
Started the day with a shot of Toradol and then headed out to Tahquamenon Falls and to see the Bears. Had a great day with the family and was so glad we got to see it all, but it wasn’t without consequences. I was very fatigued and had pretty bad head pain by the end of the day. But we just took it nice and slow.
We decided to let our adventures continue and see parts of the Upper Peninsula we haven’t been too or it had been a long time. I had to use a great deal of medication to get me through these next few days but it was so worth it.
We are going off grid for a week. Heading to Canada with my brother Doug, sister in law Dawn, and nephew Nathan. Looking forward to relaxing week away from the real world. So see everyone on the flip side!!
The 5 days we spent off the grid were wonderful! No phones, no computers, very little electronic use. The guys fished, the kids played on the stony beach, we went swimming and kayaking and had a fish fry. The time away from it all was the first time I was headache free without the aid of medication. Three entire days with no migraine…it was amazing. And who knew it, but the sauna was one of my favorite parts!!!
What a great trip! I can’t wait to make that trip again someday! Although I am not looking forward to the actual drive 😉
Back to the Good Ole U S of A