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Off the Grid

We are going off grid for a week. Heading to Canada with my brother Doug, sister in law Dawn, and nephew Nathan. Looking forward to relaxing week away from the real world. So see everyone on the flip side!!

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The 5 days we spent off the grid were wonderful!  No phones, no computers, very little electronic use.  The guys fished, the kids played on the stony beach, we went swimming and kayaking and had a fish fry.  The time away from it all was the first time I was headache free without the aid of medication.  Three entire days with no migraine…it was amazing.  And who knew it, but the sauna was one of my favorite parts!!!

What a great trip!  I can’t wait to make that trip again someday!  Although I am not looking forward to the actual drive 😉

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Back to the Good Ole U S of A

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Rental Property Nightmare

6/12/15 Saturday: A huge thank you today to my mom and dad, Mike and Mindy Richmond, Stephanie and Jared Jordan. We had the perfect number!!! We got 2 bedrooms and a living room painted.  Just need to do trim and doors in the bedrooms. And the guys tackled an enormous project.  Since the renters did not have trash removal for two years. They burned everything and dumped the ashes and big stuff behind the garage. Unbelievable!! How can people live in such filth. But feeling so grateful for all the help. We couldn’t have made this kind of progress without you. The house really is beginning to look amazing.

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ETran and Music Concert

First Ride on ETran

Ever since this all started back in January and I was put on meds where my cognitive abilities were questionable I decided that I shouldn’t drive.  And then it was confirmed by my doctor that should not drive on the May 7thcocktail of meds that I was on…so I refrained from driving.  Besides friends who have been so kind to come and take me places (Carrie McHugh David, Dawn Tomlin, and Christina Coblentz Yoder). and of course my family (Sherry and Bob Weaver) I feel trapped at home not being able to drive however most days I didn’t really want to leave my house so it was ok.   But I was ready to get out and out about a little.

But Mindy a dear friend that has MS learned of a service in her county that would pick up and drop off at her house.  For her this was wonderful, so she could go to Dr. apts, take the kids places, have options.  So I looked into my county and they had a similar service, called ETran.  This was my first trip on ETran.  It is really pretty bumpy out on the country/dirt roads, but at least I was able to go to my physical therapy appointment on my own.  The bumps in the road did however escalate my head pain. Just hoping that it won’t turn into a migraine.  It is a great feeling knowing that I have a way to get places if I don’t get too ill from all the jarring. Should be a short ride though.  Unfortunately I did have to take Zofran for nausea but the head pain only escalated to a 3.

I had my first Physical Therapy appointment today.  In Charlotte, Hayes Green Beach Hospital has all of their physical therapists located at Alive.   I was assigned to Luke who had had experience with Neurology and Head pain patients.  He was great but man did it hurt my head 😦

Josiah’s Music Concert

IMG_4539In the evening I had to go to Josiah’s concert and I so badly wanted to go, but my head pain continued to increase, and the anxiety of being in crowd was very real.  But I took a Toradol shot and used ear plugs and was able to get through the concert.   I was so glad that I got to attend an event for the first time in a long time.  Josiah is up front on the left with the solid blue shirt and jeans.

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A 15 year old Hoya Plant

May 5thThis Hoya has such beautiful flowers. We have had this plant for 16 years. We got this plant right around the time we started dating and it just keeps going. Just like our marriage. God gave me a best friend and an amazing husband. These past 15 weeks have been hard on us all but Dan has stepped up in so many ways. And now he even does everything without pouting j/k. But the beginning was rough when he couldn’t understand. But he gets it now. No way I could get through this without him and my parents ( Sherry Dunne Weaver and Bob Weaver). They have done so much I can’t even begin to explain but they took Gideon and I in for almost 6 weeks because I was non functional. I am back in that boat again but we are trying teach Josiah to make dinner or lunch and to take care of Gideon if dad has to be gone and i can’t help. Many others have helped out too and I thank you for your continued support. This isn’t over yet unfortunately but with the support I have we will get through this. Thank you is barely enough but from my heart I thank you.

Sandi Davidson: Thinking of you Heather. You have had a rough road lately. Hopefully it will get better soon.
Dawn Tomlin: Words can’t express my support and love. You all are adapting. God is your stronghold. It’s amazing to be apart of your lives. Through sickness and health!! We are in this together. You are NOT alone!!
Heather Loose Johnson: Love you too friend. We sure have been through a lot together haven’t we.
Merry Dunne Blades: Such a Beautiful & Unique flower just like your relationship with Dan and your Wonderful Family.
Sherry Dunne Weaver: Amazing how little blessings like this flower shine through even in the darkest times.
Heather Loose Johnson: It is funny how taking a picture of these amazing little flowers to post on FB, that I got all that out of a flowering plant.
Anita M. Bremmer: Beautiful plant! We wish you well, Heather!
Today I went to see my family physician, Dr. Wulff, to follow up on blood tests that showed a high cholesteral level and low B12.  He gave me some paperwork to help reduce cholesteral naturally (but I never did follow it 😛 ).  And then he gave me a B12 shot.  He set me up on a 90 blood work for cholesteral to see if it went down naturally.

 

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Nerve Block Relief to Debilitating head pain

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Saturday April 25th: Still feeling very functional today from the nerve block.  Four days now and they said it could last up to a week. But since I had a rough night last night I laid low today, so I stayed in bed just to prevent the head pain from escalating.

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Sunday April 26th: another functional day.  We even went to Sam’s club to with friends and eat lunch.  Gideon’s favorite place to eat.  It was so nice to get out of the house and do something with friends…it had been so long.  Gideon was whipped on our way home:

 

I think Gideon was also glad to be home as well.  He loved being at Grandma’s but there really no place like home in your own bed.

Monday April 27th: My first day home alone and again very low head pain.  I attempted a couple of mundane tasks today; laundry and balancing the check book, but it wasn’t long before my head pain increased.  But a functional day none the less.

Tuesday April 28th: And another functional, low head pain…this sure has been wonderful.  Today I made my first attempt at doing taxes and then I made dinner for the first time in 14 weeks.  Pain never went above a 3!!  Good day!  And here is a random picture of my medicine basket.  Half of them are ones that I have tried and the other half are ones that I am currently taking:

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Wednesday April 29th: I have been so fortunate with the nerve block actually lasting for this long.  I woke with a very low head pain.  I spent the day organizing files and then worked on taxes.  I was doing a fair amount of bending over with the file organization and that lead to a head pain spike but only to a 3.  I believe that stress is also adding to the head pain: money, taxes, becoming functional again, the rental house, a law suit, selling the house, oh yah and we decided to get the old house resided to boot.  We are working on getting our rental ready to sell and by we I mean Dan. We would to get the house sided and would like 2 more estimates. Does anyone know a reliable crew that could do an estimate?

In addition to all April 29thof this stuff that I have going on with my head…our renters left us high and dry with a house that was a disaster.  So in the middle of this Dan has been trying to get over there as much as he can to fix things and what not.  And I have begun compiling a small claim
s law suit against the renters and we have decided to sell the house…but it will take quite some time to get it market ready.  Oh yah not to mention what was going on at work, short term disability and all the paperwork that had to be continuously filled out.

Thursday April 30th: I still got to wake up with hardly any head pain at all which was wonderful.  Most of the day the pain remained at bay and I felt great.

I actually made lunch for myself today.  I made ham and cheese roll ups with a little ranch. A favorite in our house really. Anything on a tortilla works for me and then some days I just eat cereal if my headache is bad.

When Dan and the kids got home we all went for a walk down the road.  Which I vastly overestimated the distance that I could go.  I was almost in an asthma attack and then the head pain spiked really bad and I was completely down and in bed for the rest of the night.  But we got a couple of lovely pictures from our awesome walk!

April 30th 2

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Facebook conversation with my Migraine friend Carrie’s mom Ruthanne:

Ruthanne Manger Ovenhouse:
How are you doing Heather ?
Heather Loose Johnson: When I don’t exert any energy I seem to be functional. As soon as I do things like putting away clothes and going for a walk the headache goes from manageable to severe quickly. Other than that I am enjoying my family time. I have a spray that I can use on my temples that knocks my headache down instantly for temporary relief.  How is Carrie?
Ruthanne Manger Ovenhouse:  Glad you are having some progress, however slow – I know you must still be so frustrated! She should be released tomorrow am. Nerve block has given her some relief – May last a week, a month or a year. I’m praying for a year
Heather Loose Johnson: Yes praying for the longer the better.