Update: I have an apt with Michigan head/pain neurological institute (MHNI) tomorrow. They will run a variety of tests and meetings with several drs. By the end of the day they are supposed to come up with a
plan to be seen on an outpatient basis or if they will admit me to the inpatient program. So prayers for God’s guidance and wisdom. Also prayers because it is going to be a long day.
I had a couple of days where I had some relief and while it was wonderful to have the break from the constant awful pain, I had to be in a quiet, dark with minimal stimulation. Last night and today I came out of the dark and started talking more and watching some TV and the full blown headache is back. TV and conversation are big migraine triggers, also light, noise and over stimulation. So prayers that I get some sleep tonight as well. We have to leave at 5am.
They are hoping and planning on admitting me to the inpatient program as long as insurance approves the stay. If they do they are hoping to get me in early next week and plan on a 5-10 day stay. I should know tomorrow afternoon.
The headache continues at a level that is not quite debilitating and yet I still don’t find myself able to function very well. The light sensitivity/photophobia seems to be quite extreme lately so it makes it hard to be up and about. And the overstimulation/phonophobia (often brought about by to much noise or movement aka Gideon jumping about). So in order to avoid the headache becoming debilitating I hunker down in the basement or I sleep. None of this is the description of someone with a manageable headache.
I will give the meds some more time but I have begun looking into the two in patient headache clinics and both are in network for my insurance. My next call will be to find out if they have availability of rooms and what it might entail. I just want to get back to my family and to my work. Shoot I would even love to be able to go to the store or out to eat but the thought is terrifying to me. So prayers for guidance on the next step that is right for me and my family.
Although the headache persisted most of the day I had a couple of bright spots in my day. Thank you to Udenika Wijesinghe for coming to visit. Sorry the dr was here for much of your visit and thank you for your patience. It was good to see you again. I hope next time it is for lunch for a fun afternoon out
It was so great to celebrate your birthday Dawn Tomlin. Isn’t it exactly how you had envisioned it in a hospital room sitting next to me. The Taco Bell was heavenly! And hopefully the blonde brownies were yummy, I know I have enjoyed them. But having the company was superb. Thank you again for visiting and keeping my spirits high.
Now off to sleep. Several meetings with specialists tomorrow and then I go home at the end of the day tomorrow. Apparently the insurance company is starting to question why I have been here for so long. Because I still have a killer headache and they haven’t figured out how to control it that’s why. But alas they are sending me home. So we will manage. More updates as I know more tomorrow.