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Settled in at my Parents

All settled in at my mom and Bobs for the week. Headache is manageable most of the time and for that I am so very thankful. I am extremely fatigued so the combination of the headache that makes me want to rest and the utter fatigue walking from one room to another are going to prove a long road to recovery. It sounds like I should team up with Melinda Richmond to beat the fatigue, get enough rest and drink enough water so my blood pressure will stop plummeting. I continue to hover around 90/55 or so. Gotta keep drinking water, getting rest and somehow start to get some exercise (in time). But for now I continue to rest.

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Home again…making adjustments

Slept all night in my own bed and it was wonderful…no beeping, no needle pokes in the middle of the night, no one waking me at 5:30 to take prilosec. But I did have a rough patch in the early morning.   Thankfully I was able to fall back asleep and slept until noon. Luckily Dan and I came up with a plan to dispense my medicines for morning last night so I just had to take them around the right time. It worked great. My head is still quite numb from the injections and the injection sites are starting to hurt a bit but overall I am doing ok!!

Has anyone ever had TMJ? I woke up yesterday in the hospital feeling like someone punched me in the jaw and I had a hard time opening my mouth. The nurse said it was probably TMJ due to the constant headache and I was probably clenching in my sleep. So now my rice bag has so many purposes. The newest being the injection sites and the jaw. At least I have a brief relief from the mind exploding headache.  I will take it.

tmj-diagram

I’m looking for a blood pressure cuff to borrow or know where we could rent one or buy one. After being awake for an hour and a half and just sitting in the chair I tried to get up and almost passed out so we were thinking we might want to start monitoring my blood pressure at home…with the advice of friends, Dan went to CVS and bought one.  Just took my blood pressure is 97/58. Going to monitor it and keep drinking fluids to get it back up above 100/60.

It just sucks that TMJ is one more thing that just started and causes additional pain. Plus the low blood pressure that is making it difficult to be up and around. Ugh. I’m not at the end of my rope but there isn’t much left.

And now the microwave died. Ugh! My main source of relief from pain is a heated rice bag. Going to try heating in the oven.  Update: Dan looked up on eHow how to reset the microwave and it worked. Phew. That was a close call!!  But the best FB response was from Emily:

Emily Feldpausch: Use the crock pot! (I continued to use the crock pot everywhere I went, including my bedroom, the hospital and at my moms.  Now I have a microwave in my bedroom, but the crock pot was genius!)