The headache continues at a level that is not quite debilitating and yet I still don’t find myself able to function very well. The light sensitivity/photophobia seems to be quite extreme lately so it makes it hard to be up and about. And the overstimulation/phonophobia (often brought about by to much noise or movement aka Gideon jumping about). So in order to avoid the headache becoming debilitating I hunker down in the basement or I sleep. None of this is the description of someone with a manageable headache.
I will give the meds some more time but I have begun looking into the two in patient headache clinics and both are in network for my insurance. My next call will be to find out if they have availability of rooms and what it might entail. I just want to get back to my family and to my work. Shoot I would even love to be able to go to the store or out to eat but the thought is terrifying to me. So prayers for guidance on the next step that is right for me and my family.
Apparently my light sensitivity was much greater than I realized. I just hung blankets over the windows in my bedroom and wow (little did I know they would remain on the windows for almost a year until I replaced them with room darkening shades), what a difference. Looks like I will be hunkering down in here for the foreseeable future because we do not have a blanket big enough to cover the bay window in our living room. But wow, do my eyes feel so much better. Good thing my bed is comfy.
Just an update on the very weird blue fanged cat vampire bat fang bites only acquired at the hospital. Healing up just fine. Still look weird but the itch so I know they are healing. Thanks to those of you who gave advice. I don’t think we’ll ever really know what happened. It’s the size of a pencil eraser maybe a little bigger. I just did a little looking on CDC and there is no swelling or tenderness. The black looks weird but is really due to the dye in my shirt likely. And when it scabbed it turned black. I will definitely keep an eye on it and I will be back to the dr in a week. I meant to show him on Mon but forgot. To much to talk about with the head.
Valentines Day! What better way to spend the day than to spend it with people waiting on you hand and foot. I got a Valentine Day card this afternoon. The doctors decided to admit me after doing an MRI and running a bunch of blood tests. They decided that I have a rebound headache. Apparently when you stop all over the counter and narcotic medication all of the sudden you can be left with one of the most horrible headache ever.
“Rebound headaches (medication-overuse headaches) are caused by regular, long-term use of medication to treat headaches, such as migraine. Pain relievers offer relief for occasional headaches. But if you take them more than a couple of days a week, they may trigger rebound headaches.”
So they stopped any and all pain medication instantly and started me on Magnesium for 24 hours. The pain was the worst pain I had ever experienced. The photophobia was horrendous as well as the phonophobia.
“Photophobia is a symptom of abnormal intolerance to visual perception of light. As a medical symptom, photophobia is not a morbid fear or phobia, but an experience of discomfort or pain to the eyes due to light exposure or by presence of actual physical sensitivity of the eyes, though the term is sometimes additionally applied to abnormal or irrational fear of light such as heliophobia.”
“Phonophobia is an anxiety disorder, not a hearing disorder. Phonophobia is a fear of loud sounds. Phonophobia is also called ligyrophobia. The name “Phonophobia” originates from the Greek words for sound and fear.”
Today I learned many new terms and discovered that head pain could really be that bad.
But today I also felt like a new woman for about five minutes and it was fabulous. A huge shout out to my friend Dawn Tomlin for bringing me toiletries so I could shower and brush my teeth and balloons too. It looks like I’m going to be here for a at least a couple of days as they try to both determine the source of the headaches and to control them. Thank you for all of the prayers and please keep them coming. Tonight’s probably going to be a rough night as the first step in trying to find a new medicine to control the headache means eliminating the pain reducing medicines.
Clean Hair!!! It is a wonderful thing.
The great feeling of the shower only lasted for about 15 minutes, but it sure did feel good to be clean.