This post is just to get me back to my blog. It has been entirely too long and there is so much to catch up on. I tend to do things gung ho for a period of time and then burn out and that is exactly what happened with my blog. I am really hoping to get back to it, especially during this time of reprieve.
Just a quick migraine recap…I went to Mayo and they put me on Neurontin stepping me up to 2400mg/day. I successfully made that step up and had my first 8 day window with no migraine and then it came back full force. I was also prescribed prednisone for 2 months starting at 80mg/day for a week and stepping down 10mg per week. I started the prednisone on June 8th and have been on it for 22 days. And let me tell you I FEEL FANTASTIC!!! I feel like I could do anything, go anywhere, be anyone, etc. I even went Jet skiing for the first time which by the way brought on a major migraine regardless of all the meds I am on…so I still have to be careful.
But the one thing I am so very much enjoying is reconnecting with my husband and 2 kids. They have missed me and I have missed them and it wasn’t until I started the prednisone that it truly sunk in that I have been completely absent from their lives for the past year and a half. Yes, I made veiled attempts to be with them in the same room, but there was always this anxiety that a sound they would make would trigger a migraine, so I could never be fully present with them. And now I am able to snuggle, spend time with and not be the snarky mom I have been for the past year. Yes I still get frustrated with my 5 and 10 year old of course, but I don’t feel like I am going to strangle their necks because they dropped a marble on the floor.
I just feel happy! I don’t think you can truly understand happiness and joy unless you have had it taken away and for that I can be thankful for the trials and tribulations I have been through over the course of the past year and a half.
I don’t look forward to the end of the prednisone trial (2 months), but at the same time I really don’t think about it much because I am truly able to live in the moment and feel happiness and relief.
I have lots to catch you up on: end of year school activities I got to partake in, vacation, dealing with migraine and kids on summer break fears and so much more. So keep an eye out for more to come! Sorry for the hiatus but it is good to be back!!!